Medical Information Only. Always consult your healthcare provider before enrolling in any clinical trial.

NCT00001416 · ClinicalTrials.gov registry record · Phase 2

Bone Response to Enzyme Replacement in Gaucher's Disease

A Phase 2 study of Gaucher's Disease, sponsored by National Institute of Neurological Disorders and Stroke (NINDS).

Completed
Registry status
Phase 2
Development phase
100
Enrollment target
1
Study location

NCT00001416: Completed Phase 2 study of Gaucher's Disease, sponsored by National Institute of Neurological Disorders and Stroke (NINDS).

NCT00001416 is a Phase 2 study of Gaucher's Disease that has completed, run by National Institute of Neurological Disorders and Stroke (NINDS). The registered enrollment target is 100 participants, above the 65-participant average among 3 other Gaucher's Disease trials with a reported enrollment target (54% higher). The trial reports 1 study location across 1 state. According to ClinicalTrials.gov, the official US trial registry.

View on ClinicalTrials.gov ↗

View your shortlist →

The verdict

NCT00001416, a Phase 2 study of Gaucher's Disease, has completed, sponsored by National Institute of Neurological Disorders and Stroke (NINDS).

COMPLETED
Registry status
Phase 2
Development phase
100 participants
Enrollment target
1
Study location

Study Summary

The purpose of this study is to examine how the skeleton responds to repeated doses of enzyme replacement therapy in patients with type I Gaucher's disease who have had their spleens removed. Gaucher disease is a lysosomal storage disease resulting from glycocerebroside accumulation in macrophages due to a genetic deficiency of the enzyme glucocerebrosidase. It may occur in adults but occurs most severely in infants, in whom cerebroside also accumulates in neurons. Patients with Gaucher's disease experience enlargement of the liver and spleen and bone destruction. The condition is passed from generation to generation through autosomal recessive inheritance. Type I is the most common form. It is a chronic non-neuronopathic form, meaning the disease does not affect nerve cells. The symptoms of type I can appear at any age. In this study patients will be divided into three groups. Each group will receive different doses of enzyme replacement (Ceredase). In addition, two of the three groups will also receive doses of a form of vitamin D (calcitriol). Researchers believe the groups receiving vitamin D will have an improved response as compared to those patients only receiving enzyme replacement. Patients in each group who respond to enzyme replacement with increases in bone density will be compared to the other treatment groups.

Conditions Studied

Interventions

  • DRUG CEREDASE™

Study Locations (1)

Maryland

  • National Institute of Neurological Disorders and Stroke (NINDS) - Bethesda

Trial Details

FieldValue
Enrollment Target 100 participants
Start Date 1993-12
Est. Completion 2000-11
Phase Phase 2

What the finished NCT00001416 record still lists

NCT00001416 is an interventional study that assigns participants to a tested intervention. The registered 100 participants enrollment target is mid-sized for trials with a published cap, above the 65-participant average among 3 other Gaucher's Disease trials with a reported enrollment target (54% higher).

The record links to 1 condition, with Gaucher's Disease appearing as the primary indexed condition, and to 1 intervention - of which CEREDASE™ is the first listed.

NCT00001416 reports a single indexed study location in Maryland.

Frequently Asked Questions

What is clinical trial NCT00001416 about?

NCT00001416 is a clinical study titled "Bone Response to Enzyme Replacement in Gaucher's Disease". The purpose of this study is to examine how the skeleton responds to repeated doses of enzyme replacement therapy in patients with type I Gaucher's disease who have had their spleens removed. Gaucher disease is a lysosomal storage disease resulting from glycocerebroside accumulation in macrophages ...

What is the current status of trial NCT00001416?

This trial is currently completed. It is a Phase 2 study. The enrollment target is 100 participants. The study started on 1993-12. Estimated completion is 2000-11.

What conditions does trial NCT00001416 study?

This clinical trial studies the following conditions: Gaucher's Disease.

What interventions are being tested in trial NCT00001416?

The interventions under investigation include: CEREDASE™ (DRUG).

Who is sponsoring clinical trial NCT00001416?

This trial is sponsored by National Institute of Neurological Disorders and Stroke (NINDS), which has 567 total clinical trials registered on ClinicalTrials.gov.

Where is trial NCT00001416 being conducted?

This trial has 1 study location across Maryland. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.

Similar trials for Gaucher's Disease

Matched on the same primary condition, ranked to surface studies in the same phase first, then by recruiting status, no relevance scoring or editorial curation.

Nationwide trials with similar profiles

Cross-condition peers matched on enrollment target and registry start date, not the same-condition list above.

Similar enrollment target

  • NCT01048281 · 100 participants

    Clinical & Pathological Studies of Upper Gastrointestinal Carcinoma

  • NCT01161199 · 100 participants

    The Use of Leukapheresis to Support HIV Pathogenesis Studies

  • NCT01327690 · 100 participants · Early Phase 1

    Mental Health in Veterans and Families After Group Therapies

  • NCT01730781 · 100 participants

    Imaging Cannabinoid Receptors Using Positron Emission Tomography (PET) Scanning

Similar registry start date

  • NCT05988463 · started 2027-01-01 · Phase 1

    Dose-Escalation Study of Artesunate Patients With IPF

  • NCT07219706 · started 2026-12-10 · NA

    Dietary Fiber and Time Restricted Eating

  • NCT02831335 · started 2026-12-01

    Technical Development of Multi-Parametric Renocerebral MRI

  • NCT05962346 · started 2026-12 · NA

    Fetal Endoscopic Tracheal Occlusion for Congenital Diaphragmatic Hernia

Source: ClinicalTrials.gov NCT00001416, the US trial registry maintained by the National Library of Medicine. NCT00001416 (mid enrollment · single site footprint · completed) retrieved and formatted by PlainTrial, see methodology.