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NCT07489378 · ClinicalTrials.gov registry record
NCI Childhood Cancer Data Initiative (CCDI) Led Pediatric, Adolescent, and Young Adult Rare Cancer Registry for Very Rare Solid Tumors
A clinical trial, sponsored by National Cancer Institute (NCI).
- Recruiting
- Registry status
- 4,000
- Enrollment target
NCT07489378: Recruiting study, sponsored by National Cancer Institute (NCI).
NCT07489378 is a clinical trial that is actively recruiting participants, run by National Cancer Institute (NCI). The registered enrollment target is 4,000 participants. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT07489378 is actively recruiting participants, sponsored by National Cancer Institute (NCI).
- RECRUITING
- Registry status
- 4,000 participants
- Enrollment target
Study Summary
Background: All childhood cancers are rare, but some are called very rare. Very rare cancers are diagnosed in 2 or fewer out of 1 million people each year. Researchers want to gather data so they can learn more about these very rare cancers. They hope to use the data to develop future treatments. Objective: To gather data for a registry of very rare cancers found in children, teens, and young adults. Eligibility: People aged 1 month to 39 years newly diagnosed (within the past year) with a very rare cancer. Design: Participation will be by phone or email. No clinic visits are required. Researchers will look at the participant s medical records. They will ask for samples of tumor tissue that were already removed. They will use the samples for genetic testing. The results of these tests will be sent to the participant s own doctors. Some participants will be asked for saliva or cheek swab samples. They will receive a kit in the mail. They will spit into a tube or swab the inside of their cheek. They will mail the sample back to the lab. Participants will fill out questionnaires once a year for 5 years. They will answer questions about: Family history, such as other cancers in the family and their income, work, and education. Demographics, such as their gender, nationality, ethnicity, education, and work history. Symptoms and treatment for their cancer. This may include level of pain, and emotional and physical well-being. Participants data will be added to a secure database for other researchers. Their data will be anonymous.
Primary Outcome
Percentage of participants from identified recruitment sources will be tabulated and described. An analysis of the ability to adequately obtain medical records at initial evaluation and follow-up to perform medical data extraction, which is critical to establishing a registry and longitudinal observational study will be assessed.
Interventions
- OTHER Natural history study of individuals with very rare tumors
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 4,000 participants |
| Start Date | 2026-07-15 |
| Est. Completion | 2037-04-01 |
What NCT07489378 shows while recruiting
NCT07489378 is an observational study that tracks outcomes without assigning an intervention. Its 4,000 participants enrollment target places it among the larger protocols in the corpus.
The record links to 0 conditions, and to 1 intervention - of which Natural history study of individuals with very rare tumors is the first listed.
NCT07489378 does not publish any study locations in the registry export this page uses.
Frequently Asked Questions
What is clinical trial NCT07489378 about?
NCT07489378 is a clinical study titled "NCI Childhood Cancer Data Initiative (CCDI) Led Pediatric, Adolescent, and Young Adult Rare Cancer Registry for Very Rare Solid Tumors". Background: All childhood cancers are rare, but some are called very rare. Very rare cancers are diagnosed in 2 or fewer out of 1 million people each year. Researchers want to gather data so they can learn more about these very rare cancers. They hope to use the data to develop future treatments. ...
What is the current status of trial NCT07489378?
This trial is currently recruiting. The enrollment target is 4,000 participants. The study started on 2026-07-15. Estimated completion is 2037-04-01.
What interventions are being tested in trial NCT07489378?
The interventions under investigation include: Natural history study of individuals with very rare tumors (OTHER).
Who is sponsoring clinical trial NCT07489378?
This trial is sponsored by National Cancer Institute (NCI), which has 3,257 total clinical trials registered on ClinicalTrials.gov.
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