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NCT06508164 · ClinicalTrials.gov registry record
International CRDS Registry
A clinical trial of Calcium Release Deficiency Syndrome, sponsored by Population Health Research Institute.
- Recruiting
- Registry status
- 500
- Enrollment target
- 16
- Study locations
NCT06508164: Recruiting study of Calcium Release Deficiency Syndrome, sponsored by Population Health Research Institute.
NCT06508164 is a study of Calcium Release Deficiency Syndrome that is actively recruiting participants, run by Population Health Research Institute. The registered enrollment target is 500 participants. The trial reports 16 study locations across 11 states. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT06508164, a study of Calcium Release Deficiency Syndrome, is actively recruiting participants, sponsored by Population Health Research Institute.
- RECRUITING
- Registry status
- 500 participants
- Enrollment target
- 16
- Study locations
Study Summary
Calcium Release Deficiency Syndrome (CRDS) is a newly discovered genetic arrhythmia syndrome that confers a risk of life-threatening arrhythmias secondary to RYR2 loss-of-function. The International CRDS registry has been designed to facilitate large-scale evaluation of CRDS, including its phenotypic spectrum, approaches to risk stratification, and optimal treatment strategies.
Primary Outcome
Composite of malignant syncope, ICD shock, cardiac arrest, and sudden cardiac death
Conditions Studied
Study Locations (16)
Other
- Universitair Ziekenhuis Brussel - Brussels
- Aarhus University Hospital - Aarhus
- Shaare Zedek Medical Center - Jerusalem
- City St George's, University of London - London
Ontario
- Hamilton General Hospital - Hamilton
- London Health Sciences Centre - University Hospital - London
Quebec
- Montréal Heart Institute - Montreal
- Institut Universitaire de Cardiologie et de Pneumologie de Québec-Université Laval - Québec
California
- University of California - San Francisco
Minnesota
- Mayo Clinic - Rochester
North Carolina
- Duke University - Durham
New South Wales
- Garvan Institute of Medical Research - Darlinghurst
Antwerp
- Antwerp University Hospital - Edegem
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 500 participants |
| Start Date | 2024-11-21 |
| Est. Completion | 2050-12-31 |
What NCT06508164 shows while recruiting
NCT06508164 is an observational study that tracks outcomes without assigning an intervention. The registered 500 participants enrollment target is mid-sized for trials with a published cap.
The record links to 1 condition, with Calcium Release Deficiency Syndrome appearing as the primary indexed condition, and to 0 interventions.
NCT06508164 lists 16 locations in 11 states (Other, Ontario, Quebec).
Frequently Asked Questions
What is clinical trial NCT06508164 about?
NCT06508164 is a clinical study titled "International CRDS Registry". Calcium Release Deficiency Syndrome (CRDS) is a newly discovered genetic arrhythmia syndrome that confers a risk of life-threatening arrhythmias secondary to RYR2 loss-of-function. The International CRDS registry has been designed to facilitate large-scale evaluation of CRDS, including its phenotypi...
What is the current status of trial NCT06508164?
This trial is currently recruiting. The enrollment target is 500 participants. The study started on 2024-11-21. Estimated completion is 2050-12-31.
What conditions does trial NCT06508164 study?
This clinical trial studies the following conditions: Calcium Release Deficiency Syndrome.
Who is sponsoring clinical trial NCT06508164?
This trial is sponsored by Population Health Research Institute, which has 21 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT06508164 being conducted?
This trial has 16 study locations across California, Minnesota, North Carolina, New South Wales, Antwerp. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
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