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International CRDS Registry
NCT06508164 · View on ClinicalTrials.gov ↗
Study Summary
Calcium Release Deficiency Syndrome (CRDS) is a newly discovered genetic arrhythmia syndrome that confers a risk of life-threatening arrhythmias secondary to RYR2 loss-of-function. The International CRDS registry has been designed to facilitate large-scale evaluation of CRDS, including its phenotypic spectrum, approaches to risk stratification, and optimal treatment strategies.
Conditions Studied
Study Locations (16)
Other
- Universitair Ziekenhuis Brussel — Brussels
- Aarhus University Hospital — Aarhus
- Shaare Zedek Medical Center — Jerusalem
- City St George's, University of London — London
Ontario
- Hamilton General Hospital — Hamilton
- London Health Sciences Centre - University Hospital — London
Quebec
- Montréal Heart Institute — Montreal
- Institut Universitaire de Cardiologie et de Pneumologie de Québec-Université Laval — Québec
California
- University of California — San Francisco
Minnesota
- Mayo Clinic — Rochester
North Carolina
- Duke University — Durham
New South Wales
- Garvan Institute of Medical Research — Darlinghurst
Antwerp
- Antwerp University Hospital — Edegem
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 500 participants |
| Start Date | 2024-11-21 |
| Est. Completion | 2050-12-31 |
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Full Details on ClinicalTrials.gov ↗What the Registry Record Tells You About NCT06508164
The ClinicalTrials.gov registry entry for NCT06508164 describes a study currently listed as recruiting. It is categorized as an unspecified phase, which is the standard way researchers label where a study sits along the investigational pathway from early safety work through later efficacy and post-marketing evaluation. The registered enrollment target is 500 participants, a figure that helps gauge the scale of data the investigators plan to collect. The listed sponsor is Population Health Research Institute, which has 68 total studies on file at ClinicalTrials.gov, and sponsors are the parties responsible for study design, oversight, and regulatory filings.
The record links to 1 condition, with Calcium Release Deficiency Syndrome appearing as the primary indexed condition, and to 0 interventions. Interventions can include drugs, devices, procedures, behavioral programs, or observational arms, and each is tracked as a separate registry field so that downstream queries can filter accurately. When a trial lists multiple interventions, it usually reflects a multi-arm design or a comparison protocol rather than a single treatment being tested in isolation. The brief summary published in the registry is the clearest source of protocol intent and should be read before drawing conclusions from any sidebar tags.
Geographic footprint matters for practical reasons: NCT06508164 reports 16 study locations spanning 11 distinct geographic areas — top geographies include Other, Ontario, Quebec. A larger site network tends to correlate with broader recruitment capacity, but it does not imply anything about study quality, and site-level enrollment status can diverge from the overall registry status shown above. Every data point on this page comes from the public ClinicalTrials.gov dataset and is reproduced here for reference only; it is not a medical recommendation, an endorsement of the sponsor, or an invitation to enroll. Verify current status, eligibility criteria, and contact details directly at ClinicalTrials.gov, and discuss any participation decision with your own healthcare provider.
Frequently Asked Questions
What is clinical trial NCT06508164 about?
NCT06508164 is a clinical study titled "International CRDS Registry". Calcium Release Deficiency Syndrome (CRDS) is a newly discovered genetic arrhythmia syndrome that confers a risk of life-threatening arrhythmias secondary to RYR2 loss-of-function. The International CRDS registry has been designed to facilitate large-scale evaluation of CRDS, including its phenotypi...
What is the current status of trial NCT06508164?
This trial is currently recruiting. The enrollment target is 500 participants. The study started on 2024-11-21. Estimated completion is 2050-12-31.
What conditions does trial NCT06508164 study?
This clinical trial studies the following conditions: Calcium Release Deficiency Syndrome. These conditions were identified from the trial registry and reflect the primary focus areas of the research.
Who is sponsoring clinical trial NCT06508164?
This trial is sponsored by Population Health Research Institute, which has 68 total clinical trials registered on ClinicalTrials.gov. The sponsor is responsible for the study's design, funding, and regulatory compliance.
Where is trial NCT06508164 being conducted?
This trial has 16 study locations across California, Minnesota, North Carolina, New South Wales, Antwerp. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
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