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NCT06190626 · ClinicalTrials.gov registry record
Longitudinal Prospective Natural History Study of Retinopathy in Zellweger Spectrum Disorder
A clinical trial of Zellweger Spectrum Disorder, sponsored by McGill University Health Centre/Research Institute of the McGill University Health Centre.
- Recruiting
- Registry status
- 30
- Enrollment target
- 3
- Study locations
NCT06190626: Recruiting study of Zellweger Spectrum Disorder, sponsored by McGill University Health Centre/Research Institute of the McGill University Health Centre.
NCT06190626 is a study of Zellweger Spectrum Disorder that is actively recruiting participants, run by McGill University Health Centre/Research Institute of the McGill University Health Centre. The registered enrollment target is 30 participants. The trial reports 3 study locations across 3 states. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT06190626, a study of Zellweger Spectrum Disorder, is actively recruiting participants, sponsored by McGill University Health Centre/Research Institute of the McGill University Health Centre.
- RECRUITING
- Registry status
- 30 participants
- Enrollment target
- 3
- Study locations
Study Summary
The goal of this observational study is to define the course of the retinal degeneration in a ZSD patient cohort. The objective of this study is to gather information so the investigators can: 1. define the course of the retinal degeneration in a ZSD patient cohort with retinal degeneration 2. define what tests best monitor the progression of the retinal degeneration 3. generate prognostic information about vision loss in ZSD. At each yearly visit, the participants will answer a functional vision questionnaire, have a physical evaluation, blood test, and participate in a variety of vision tests. The investigators will also collect pertinent medical history. Participants will travel to study site. The study will provide financial support for board and travel.
Primary Outcome
Using various tests of vision measured annually, a description of disease progression will be defined in each participant.
Conditions Studied
Study Locations (3)
New York
- University of Rochester Medical Center/Flaum Eye Institute - Rochester
Alberta
- Eye Institute of Alberta - Edmonton
Quebec
- Research Institute-McGill University Health Center - Montreal
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 30 participants |
| Start Date | 2023-12-18 |
| Est. Completion | 2029-01-01 |
Sponsor
McGill University Health Centre/Research Institute of the McGill University Health Centre9 total trials
What NCT06190626 shows while recruiting
NCT06190626 is an observational study that tracks outcomes without assigning an intervention. The registry caps enrollment at 30 participants, a relatively small participant target.
The record links to 1 condition, with Zellweger Spectrum Disorder appearing as the primary indexed condition, and to 0 interventions.
NCT06190626 reports a single indexed study location in New York, Alberta, Quebec.
Frequently Asked Questions
What is clinical trial NCT06190626 about?
NCT06190626 is a clinical study titled "Longitudinal Prospective Natural History Study of Retinopathy in Zellweger Spectrum Disorder". The goal of this observational study is to define the course of the retinal degeneration in a ZSD patient cohort. The objective of this study is to gather information so the investigators can: 1. define the course of the retinal degeneration in a ZSD patient cohort with retinal degeneration 2. def...
What is the current status of trial NCT06190626?
This trial is currently recruiting. The enrollment target is 30 participants. The study started on 2023-12-18. Estimated completion is 2029-01-01.
What conditions does trial NCT06190626 study?
This clinical trial studies the following conditions: Zellweger Spectrum Disorder.
Who is sponsoring clinical trial NCT06190626?
This trial is sponsored by McGill University Health Centre/Research Institute of the McGill University Health Centre, which has 9 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT06190626 being conducted?
This trial has 3 study locations across New York, Alberta, Quebec. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
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