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NCT05937724 · ClinicalTrials.gov registry record
Siblings as Caregivers
A clinical trial, sponsored by University of Utah.
- Completed
- Registry status
- 42
- Enrollment target
NCT05937724 is a clinical trial that has completed, run by University of Utah. The registered enrollment target is 42 participants.
The verdict
NCT05937724 has completed, sponsored by University of Utah.
- COMPLETED
- Registry status
- 42 participants
- Enrollment target
Study Summary
The current body of research fails to acknowledge or understand what type of care children are giving to their siblings, yet it appears to be a common practice in many cultures. To address this gap, we propose to examine the role and activities children provide to siblings with a chronic illness or disability. Additionally, we seek to better understand what preparation, training, or support (either formal or informal) are provided to siblings who are actively engaged in the caregiving process. We will further examine indicators for quality of relationship between the two siblings and examine themes and associations. We will accomplish this through a mixed-methods design with the four following aims: Aim 1: Describe the role and activities of children (ages 7 to 17) while providing care for a sibling with a chronic illness or disability. Through a descriptive qualitative inquiry, we will ascertain details and experiences on caregiving from the perspective of the parent and the sibling (separately) regarding the care the sibling provides to the child with a chronic illness. Themes of connection, friendship, direct medical and physical care (such as feeding) will be explored. Open ended questions which support the aim will be asked indirectly and directly, such as, "What does your day look like when you are getting ready to go somewhere" verses "Can you describe how you help your sibling each day." Aim 2: Investigate ways in which children are educated, trained, or supported in their caregiving role. Both qualitative information and quantitative data will be gathered as guided by Aim 1. For example, if a sibling indicates they provide feeding support, they will be asked questions such as, "How did you learn or know how to help feed them?" Informants will also be asked questions regarding how often and how long they spend caring for their sibling using a Likert-type scale. Aim 3: Explore quality indicators of sibling relationship from the caregiving perspective. Par
Interventions
- OTHER Family Caregiving
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 42 participants |
| Start Date | 2023-08-17 |
| Est. Completion | 2023-11-01 |
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Full Details on ClinicalTrials.gov ↗What the Registry Record Tells You About NCT05937724
The ClinicalTrials.gov registry entry for NCT05937724 describes a study currently listed as completed, categorized as an unspecified phase. The registered enrollment target is 42 participants, a figure that helps gauge the scale of data the investigators plan to collect. The listed sponsor is University of Utah, which has 818 total studies on file at ClinicalTrials.gov.
The record links to 0 conditions, and to 1 intervention - of which Family Caregiving is the first listed.
NCT05937724 reports 0 study locations.
Frequently Asked Questions
What is clinical trial NCT05937724 about?
NCT05937724 is a clinical study titled "Siblings as Caregivers". The current body of research fails to acknowledge or understand what type of care children are giving to their siblings, yet it appears to be a common practice in many cultures. To address this gap, we propose to examine the role and activities children provide to siblings with a chronic illness or ...
What is the current status of trial NCT05937724?
This trial is currently completed. The enrollment target is 42 participants. The study started on 2023-08-17. Estimated completion is 2023-11-01.
What interventions are being tested in trial NCT05937724?
The interventions under investigation include: Family Caregiving (OTHER).
Who is sponsoring clinical trial NCT05937724?
This trial is sponsored by University of Utah, which has 818 total clinical trials registered on ClinicalTrials.gov.
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