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NCT05489393 · ClinicalTrials.gov registry record
CureDRPLA Global Patient Registry
A clinical trial of DRPLA, sponsored by CureDRPLA.
- Recruiting
- Registry status
- 100
- Enrollment target
- 1
- Study location
NCT05489393 is a study of DRPLA that is actively recruiting participants, run by CureDRPLA. The registered enrollment target is 100 participants. The trial reports 1 study location across 1 state.
The verdict
NCT05489393, a study of DRPLA, is actively recruiting participants, sponsored by CureDRPLA.
- RECRUITING
- Registry status
- 100 participants
- Enrollment target
- 1
- Study location
Study Summary
The objective of the CureDRPLA Global Patient Registry is to establish a longitudinal database of patient-reported data on individuals affected with Dentatorubral-pallidoluysian atrophy (DRPLA) from anywhere in the world. The CureDRPLA Global Patient Registry will address patient needs by: * Expanding patient engagement by documenting quality of life outcomes. * Providing anonymized data to the DRPLA research community on patient experience with the disease and priorities for treatment. * Connecting DRPLA patients with opportunities to participate in clinical research.
Conditions Studied
Study Locations (1)
New York
- CureDRPLA - New York
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 100 participants |
| Start Date | 2021-03-01 |
| Est. Completion | 2031-11-01 |
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Full Details on ClinicalTrials.gov ↗What the Registry Record Tells You About NCT05489393
The ClinicalTrials.gov registry entry for NCT05489393 describes a study currently listed as recruiting, categorized as an unspecified phase. The registered enrollment target is 100 participants, a figure that helps gauge the scale of data the investigators plan to collect. The listed sponsor is CureDRPLA, which has 1 total studies on file at ClinicalTrials.gov.
The record links to 1 condition, with DRPLA appearing as the primary indexed condition, and to 0 interventions.
NCT05489393 reports 1 study location spanning 1 distinct geographic area - top geographies include New York.
Frequently Asked Questions
What is clinical trial NCT05489393 about?
NCT05489393 is a clinical study titled "CureDRPLA Global Patient Registry". The objective of the CureDRPLA Global Patient Registry is to establish a longitudinal database of patient-reported data on individuals affected with Dentatorubral-pallidoluysian atrophy (DRPLA) from anywhere in the world. The CureDRPLA Global Patient Registry will address patient needs by: * Expan...
What is the current status of trial NCT05489393?
This trial is currently recruiting. The enrollment target is 100 participants. The study started on 2021-03-01. Estimated completion is 2031-11-01.
What conditions does trial NCT05489393 study?
This clinical trial studies the following conditions: DRPLA.
Who is sponsoring clinical trial NCT05489393?
This trial is sponsored by CureDRPLA, which has 1 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT05489393 being conducted?
This trial has 1 study location across New York. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
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