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NCT05489393 · ClinicalTrials.gov registry record
CureDRPLA Global Patient Registry
A clinical trial of DRPLA, sponsored by CureDRPLA.
- Recruiting
- Registry status
- 100
- Enrollment target
- 1
- Study location
NCT05489393: Recruiting study of DRPLA, sponsored by CureDRPLA.
NCT05489393 is a study of DRPLA that is actively recruiting participants, run by CureDRPLA. The registered enrollment target is 100 participants. The trial reports 1 study location across 1 state. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT05489393, a study of DRPLA, is actively recruiting participants, sponsored by CureDRPLA.
- RECRUITING
- Registry status
- 100 participants
- Enrollment target
- 1
- Study location
Study Summary
The objective of the CureDRPLA Global Patient Registry is to establish a longitudinal database of patient-reported data on individuals affected with Dentatorubral-pallidoluysian atrophy (DRPLA) from anywhere in the world. The CureDRPLA Global Patient Registry will address patient needs by: * Expanding patient engagement by documenting quality of life outcomes. * Providing anonymized data to the DRPLA research community on patient experience with the disease and priorities for treatment. * Connecting DRPLA patients with opportunities to participate in clinical research.
Primary Outcome
The questionnaires cover information about demographics, diagnosis, medical history, activities of daily living, functional mobility and disease burden.
Conditions Studied
Study Locations (1)
New York
- CureDRPLA - New York
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 100 participants |
| Start Date | 2021-03-01 |
| Est. Completion | 2031-11-01 |
What NCT05489393 shows while recruiting
NCT05489393 is an observational study that tracks outcomes without assigning an intervention. The registered 100 participants enrollment target is mid-sized for trials with a published cap.
The record links to 1 condition, with DRPLA appearing as the primary indexed condition, and to 0 interventions.
NCT05489393 reports a single indexed study location in New York.
Frequently Asked Questions
What is clinical trial NCT05489393 about?
NCT05489393 is a clinical study titled "CureDRPLA Global Patient Registry". The objective of the CureDRPLA Global Patient Registry is to establish a longitudinal database of patient-reported data on individuals affected with Dentatorubral-pallidoluysian atrophy (DRPLA) from anywhere in the world. The CureDRPLA Global Patient Registry will address patient needs by: * Expan...
What is the current status of trial NCT05489393?
This trial is currently recruiting. The enrollment target is 100 participants. The study started on 2021-03-01. Estimated completion is 2031-11-01.
What conditions does trial NCT05489393 study?
This clinical trial studies the following conditions: DRPLA.
Who is sponsoring clinical trial NCT05489393?
This trial is sponsored by CureDRPLA, which has 1 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT05489393 being conducted?
This trial has 1 study location across New York. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
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