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NCT05437536 · ClinicalTrials.gov registry record
The Severe Von Willebrand Disease (sVWD) Patient Registry
A clinical trial of VWD - Von Willebrand's Disease, sponsored by VWD Connect Foundation.
- Recruiting
- Registry status
- 400
- Enrollment target
- 1
- Study location
NCT05437536: Recruiting study of VWD - Von Willebrand's Disease, sponsored by VWD Connect Foundation.
NCT05437536 is a study of VWD - Von Willebrand's Disease that is actively recruiting participants, run by VWD Connect Foundation. The registered enrollment target is 400 participants. The trial reports 1 study location across 1 state. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT05437536, a study of VWD - Von Willebrand's Disease, is actively recruiting participants, sponsored by VWD Connect Foundation.
- RECRUITING
- Registry status
- 400 participants
- Enrollment target
- 1
- Study location
Study Summary
A web-based registry will be created by the sponsor, VWD Connect Foundation (VCF), to collect data on patients with severe Von Willebrand Disease (sVWD). Data will be self-reported by patients and/or collected by registry personnel, as appropriate. The purpose of the sVWD Patient Registry is to create a database of well-characterized (with respect to demographics, medical history, symptoms, laboratory and genetic data, etc.) patients with sVWD for participation in retrospective and prospective research.
Primary Outcome
Statistical analyses will focus on simple characterization of the registry.
Conditions Studied
Study Locations (1)
Florida
- VWD Connect Foundation - Wellington
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 400 participants |
| Start Date | 2021-12-10 |
| Est. Completion | 2027-01 |
What NCT05437536 shows while recruiting
NCT05437536 is an observational study that tracks outcomes without assigning an intervention. The registered 400 participants enrollment target is mid-sized for trials with a published cap.
The record links to 1 condition, with VWD - Von Willebrand's Disease appearing as the primary indexed condition, and to 0 interventions.
NCT05437536 reports a single indexed study location in Florida.
Frequently Asked Questions
What is clinical trial NCT05437536 about?
NCT05437536 is a clinical study titled "The Severe Von Willebrand Disease (sVWD) Patient Registry". A web-based registry will be created by the sponsor, VWD Connect Foundation (VCF), to collect data on patients with severe Von Willebrand Disease (sVWD). Data will be self-reported by patients and/or collected by registry personnel, as appropriate. The purpose of the sVWD Patient Registry is to crea...
What is the current status of trial NCT05437536?
This trial is currently recruiting. The enrollment target is 400 participants. The study started on 2021-12-10. Estimated completion is 2027-01.
What conditions does trial NCT05437536 study?
This clinical trial studies the following conditions: VWD - Von Willebrand's Disease.
Who is sponsoring clinical trial NCT05437536?
This trial is sponsored by VWD Connect Foundation, which has 1 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT05437536 being conducted?
This trial has 1 study location across Florida. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
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