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NCT04717427 · ClinicalTrials.gov registry record
Longitudinal Studies to Identify Biomarkers for Sturge-Weber Syndrome
A clinical trial of Sturge-Weber Syndrome, sponsored by University of Illinois at Chicago.
- Recruiting
- Registry status
- 250
- Enrollment target
- 8
- Study locations
NCT04717427 is a study of Sturge-Weber Syndrome that is actively recruiting participants, run by University of Illinois at Chicago. The registered enrollment target is 250 participants. The trial reports 8 study locations across 7 states.
The verdict
NCT04717427, a study of Sturge-Weber Syndrome, is actively recruiting participants, sponsored by University of Illinois at Chicago.
- RECRUITING
- Registry status
- 250 participants
- Enrollment target
- 8
- Study locations
Study Summary
Individuals with Sturge-Weber Syndrome (SWS) sometimes have brain involvement which can result in seizures, stroke-like episodes and neurologic deficits. The purpose of this study is to integrate longitudinal clinical data, radiological data, and blood biomarkers of Sturge-Weber syndrome patients. The research aims are: 1. To integrate longitudinal clinical data, radiological data, and blood biomarkers of Sturge-Weber syndrome patients. 2. Identify plasma and imaging biomarkers sensitive to exacerbation of clinical symptoms including seizures, headaches, or stroke-like episodes. 3. For enrolled patients who present with severe neurological symptoms screen blood samples for inflammatory changes. The target enrollment for this study is about 250 individuals diagnosed with Sturge-Weber Syndrome. The goal of this study is to understand more about Sturge-Weber Syndrome, the possible treatments for this disease, and identify targets for clinical trials. Those participating in the database will be asked to consent to blood draws.
Conditions Studied
Study Locations (8)
Ohio
- Cincinnati Children's Hospital - Cincinnati
- Nationwide Children's Hospital - Columbus
California
- University of California San Francisco - San Francisco
Illinois
- University of Illinois At Chicago - Chicago
Maryland
- Kennedy Krieger Institute - Baltimore
Massachusetts
- Boston Children's Hospital - Boston
Michigan
- Wayne State University - Detroit
New Mexico
- University of New Mexico - Albuquerque
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 250 participants |
| Start Date | 2021-09-08 |
| Est. Completion | 2025-06-30 |
Interested in This Trial?
Full Details on ClinicalTrials.gov ↗What the Registry Record Tells You About NCT04717427
The ClinicalTrials.gov registry entry for NCT04717427 describes a study currently listed as recruiting, categorized as an unspecified phase. The registered enrollment target is 250 participants, a figure that helps gauge the scale of data the investigators plan to collect. The listed sponsor is University of Illinois at Chicago, which has 430 total studies on file at ClinicalTrials.gov.
The record links to 1 condition, with Sturge-Weber Syndrome appearing as the primary indexed condition, and to 0 interventions.
NCT04717427 reports 8 study locations spanning 7 distinct geographic areas - top geographies include Ohio, California, Illinois.
Frequently Asked Questions
What is clinical trial NCT04717427 about?
NCT04717427 is a clinical study titled "Longitudinal Studies to Identify Biomarkers for Sturge-Weber Syndrome". Individuals with Sturge-Weber Syndrome (SWS) sometimes have brain involvement which can result in seizures, stroke-like episodes and neurologic deficits. The purpose of this study is to integrate longitudinal clinical data, radiological data, and blood biomarkers of Sturge-Weber syndrome patients. ...
What is the current status of trial NCT04717427?
This trial is currently recruiting. The enrollment target is 250 participants. The study started on 2021-09-08. Estimated completion is 2025-06-30.
What conditions does trial NCT04717427 study?
This clinical trial studies the following conditions: Sturge-Weber Syndrome.
Who is sponsoring clinical trial NCT04717427?
This trial is sponsored by University of Illinois at Chicago, which has 430 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT04717427 being conducted?
This trial has 8 study locations across California, Illinois, Maryland, Massachusetts, Michigan. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
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