Medical Information Only. Always consult your healthcare provider before enrolling in any clinical trial.
NCT04717427 · ClinicalTrials.gov registry record
Longitudinal Studies to Identify Biomarkers for Sturge-Weber Syndrome
A clinical trial of Sturge-Weber Syndrome, sponsored by University of Illinois at Chicago.
- Recruiting
- Registry status
- 250
- Enrollment target
- 8
- Study locations
NCT04717427: Recruiting study of Sturge-Weber Syndrome, sponsored by University of Illinois at Chicago.
NCT04717427 is a study of Sturge-Weber Syndrome that is actively recruiting participants, run by University of Illinois at Chicago. The registered enrollment target is 250 participants. The trial reports 8 study locations across 7 states. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT04717427, a study of Sturge-Weber Syndrome, is actively recruiting participants, sponsored by University of Illinois at Chicago.
- RECRUITING
- Registry status
- 250 participants
- Enrollment target
- 8
- Study locations
Study Summary
Individuals with Sturge-Weber Syndrome (SWS) sometimes have brain involvement which can result in seizures, stroke-like episodes and neurologic deficits. The purpose of this study is to integrate longitudinal clinical data, radiological data, and blood biomarkers of Sturge-Weber syndrome patients. The research aims are: 1. To integrate longitudinal clinical data, radiological data, and blood biomarkers of Sturge-Weber syndrome patients. 2. Identify plasma and imaging biomarkers sensitive to exacerbation of clinical symptoms including seizures, headaches, or stroke-like episodes. 3. For enrolled patients who present with severe neurological symptoms screen blood samples for inflammatory changes. The target enrollment for this study is about 250 individuals diagnosed with Sturge-Weber Syndrome. The goal of this study is to understand more about Sturge-Weber Syndrome, the possible treatments for this disease, and identify targets for clinical trials. Those participating in the database will be asked to consent to blood draws.
Primary Outcome
Integrative aspect that examines longitudinal associations of clinical symptoms, radiological disease progression, medical treatments, and blood biomarkers.
Conditions Studied
Study Locations (8)
Ohio
- Cincinnati Children's Hospital - Cincinnati
- Nationwide Children's Hospital - Columbus
California
- University of California San Francisco - San Francisco
Illinois
- University of Illinois At Chicago - Chicago
Maryland
- Kennedy Krieger Institute - Baltimore
Massachusetts
- Boston Children's Hospital - Boston
Michigan
- Wayne State University - Detroit
New Mexico
- University of New Mexico - Albuquerque
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 250 participants |
| Start Date | 2021-09-08 |
| Est. Completion | 2025-06-30 |
What NCT04717427 shows while recruiting
NCT04717427 is an observational study that tracks outcomes without assigning an intervention. The registered 250 participants enrollment target is mid-sized for trials with a published cap.
The record links to 1 condition, with Sturge-Weber Syndrome appearing as the primary indexed condition, and to 0 interventions.
NCT04717427 lists 8 locations in 7 states (Ohio, California, Illinois).
Frequently Asked Questions
What is clinical trial NCT04717427 about?
NCT04717427 is a clinical study titled "Longitudinal Studies to Identify Biomarkers for Sturge-Weber Syndrome". Individuals with Sturge-Weber Syndrome (SWS) sometimes have brain involvement which can result in seizures, stroke-like episodes and neurologic deficits. The purpose of this study is to integrate longitudinal clinical data, radiological data, and blood biomarkers of Sturge-Weber syndrome patients. ...
What is the current status of trial NCT04717427?
This trial is currently recruiting. The enrollment target is 250 participants. The study started on 2021-09-08. Estimated completion is 2025-06-30.
What conditions does trial NCT04717427 study?
This clinical trial studies the following conditions: Sturge-Weber Syndrome.
Who is sponsoring clinical trial NCT04717427?
This trial is sponsored by University of Illinois at Chicago, which has 430 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT04717427 being conducted?
This trial has 8 study locations across California, Illinois, Maryland, Massachusetts, Michigan. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
Learn More About Clinical Trials
Similar trials for Sturge-Weber Syndrome
Matched on the same primary condition, ranked to surface studies in the same phase first, then by recruiting status, no relevance scoring or editorial curation.
Nationwide trials with similar profiles
Cross-condition peers matched on enrollment target and registry start date, not the same-condition list above.
Similar enrollment target
- NCT00483249 · 250 participants · NA
Endovascular Exclusion of Thoracoabdominal and/or Paravisceral Abdominal Aortic Aneurysm
- NCT00777712 · 250 participants
Mechanisms Underlying Impaired Diabetic Wound Healing
- NCT01451502 · 250 participants · NA
Infusion of Cell Populations From Unlicensed Umbilical Cord Blood Units
- NCT01771718 · 250 participants
Pilot Study on In-vivo Non-invasive Skin Imaging Using Multiphoton Microscopy
Similar registry start date
- NCT05962346 · started 2026-12 · NA
Fetal Endoscopic Tracheal Occlusion for Congenital Diaphragmatic Hernia
- NCT07125183 · started 2026-12 · Phase 2
Study on Efficacy and Tolerability of Weekly Doxorubicin in Elderly Patients With Advanced or Metastatic Leiomyosarcoma
- NCT07292298 · started 2026-11 · Phase 2
Phase 2 Single-Arm Rectal Cancer Brachytherapy for Patients With Low-Lying Residual Adenocarcinoma After Total Neoadjuvant Therapy to Improve Organ Preservation Rates
- NCT04263285 · started 2026-10 · NA
Treatment of Depression Post-SCI