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NCT04665479 · ClinicalTrials.gov registry record · NA
Digital-storytelling Intervention for Rural-dwelling Children
A NA study, sponsored by Vanderbilt University.
- Completed
- Registry status
- NA
- Development phase
- 50
- Enrollment target
NCT04665479: Completed NA study, sponsored by Vanderbilt University.
NCT04665479 is a NA study that has completed, run by Vanderbilt University. The registered enrollment target is 50 participants, below the 1,404-participant average among 58,714 other NA trials with a reported enrollment target (96% lower). According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT04665479, a NA study, has completed, sponsored by Vanderbilt University.
- COMPLETED
- Registry status
- NA
- Development phase
- 50 participants
- Enrollment target
Study Summary
The overall purpose of this study is to test the feasibility of a web-based storytelling intervention for rural-dwelling children (ages 8-17) with serious advanced illnesses. There is a growing need for home-based end-of-life and palliative care for children with serious illnesses. While palliative care interventions offered in home settings are significantly lacking, the problems are magnified by substantial gaps in access to palliative care for rural populations. Web-based recruitment and intervention methods have the potential to access hard-to-reach rural populations and provide a cost-effective health care. In particular, legacy-making (i.e., actions/behaviors aimed at being remembered) is one strategy to help decrease suffering and improve psychosocial outcomes for children with serious illness and end of life needs. Storytelling has successfully documented child legacies and may be an ideal format for children. Guided by our existing, web-based digital storytelling intervention and previous work, this project will offer a remotely-delivered legacy-making intervention to rural-dwelling children with diverse serious, advanced health conditions and their parents.
Primary Outcome
A 8-item 5-point Likert scale measure ranging from 1 (never) to 5 (always) to assess children's psychological distress.
Interventions
- OTHER Web-based legacy-making intervention through digital storytelling
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 50 participants |
| Start Date | 2021-02-12 |
| Est. Completion | 2022-12-31 |
| Phase | NA |
What the finished NCT04665479 record still lists
NCT04665479 is an interventional study that assigns participants to a tested intervention. The registry caps enrollment at 50 participants, a relatively small participant target, below the 1,404-participant average among 58,714 other NA trials with a reported enrollment target (96% lower).
The record links to 0 conditions, and to 1 intervention - of which Web-based legacy-making intervention through digital storytelling is the first listed.
NCT04665479 does not publish any study locations in the registry export this page uses.
Frequently Asked Questions
What is clinical trial NCT04665479 about?
NCT04665479 is a clinical study titled "Digital-storytelling Intervention for Rural-dwelling Children". The overall purpose of this study is to test the feasibility of a web-based storytelling intervention for rural-dwelling children (ages 8-17) with serious advanced illnesses. There is a growing need for home-based end-of-life and palliative care for children with serious illnesses. While palliative...
What is the current status of trial NCT04665479?
This trial is currently completed. It is a NA study. The enrollment target is 50 participants. The study started on 2021-02-12. Estimated completion is 2022-12-31.
What interventions are being tested in trial NCT04665479?
The interventions under investigation include: Web-based legacy-making intervention through digital storytelling (OTHER).
Who is sponsoring clinical trial NCT04665479?
This trial is sponsored by Vanderbilt University, which has 430 total clinical trials registered on ClinicalTrials.gov.
Learn More About Clinical Trials
How this trial's enrollment target compares
Where NCT04665479's enrollment target sits among peer trials
50 1279th of 2000 higher than 622 of 2,000 other NA trials
participants (enrollment target), bucketed by value
Each bar is a band; taller bars hold more other NA trials. The dashed line + filled bar mark this entry. Hover or tap any bar for its full count and share, and where it sits relative to this entry.
Source ClinicalTrials.gov registry export · 2026-08-08
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