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NCT04644549 · ClinicalTrials.gov registry record
Natural History Study of Batten Disease
A clinical trial, sponsored by Emily de los Reyes.
- Terminated
- Registry status
- 10
- Enrollment target
NCT04644549 is a clinical trial that was terminated before completion, run by Emily de los Reyes. The registered enrollment target is 10 participants.
The verdict
NCT04644549 was terminated before completion, sponsored by Emily de los Reyes.
- TERMINATED
- Registry status
- 10 participants
- Enrollment target
Study Summary
This is a multicenter, international, study to assess the natural history data from people with Batten disease by collecting both retrospective and prospective information about the motor, behavioral and functional capabilities of patients. The study initially has 2 cohorts. Cohort 1 (n ≈ 75) includes subjects with CLN6 Batten disease. Cohort 2 (n ≈ 120) includes subjects with juvenile CLN3 Batten disease. Additional cohorts for other Batten disease subtypes may be added in the future.
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 10 participants |
| Start Date | 2021-04-27 |
| Est. Completion | 2022-03-11 |
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Full Details on ClinicalTrials.gov ↗What the Registry Record Tells You About NCT04644549
The ClinicalTrials.gov registry entry for NCT04644549 describes a study currently listed as terminated, categorized as an unspecified phase. The registered enrollment target is 10 participants, a figure that helps gauge the scale of data the investigators plan to collect. The listed sponsor is Emily de los Reyes, which has 4 total studies on file at ClinicalTrials.gov.
The record links to 0 conditions, and to 0 interventions.
NCT04644549 reports 0 study locations.
Frequently Asked Questions
What is clinical trial NCT04644549 about?
NCT04644549 is a clinical study titled "Natural History Study of Batten Disease". This is a multicenter, international, study to assess the natural history data from people with Batten disease by collecting both retrospective and prospective information about the motor, behavioral and functional capabilities of patients. The study initially has 2 cohorts. Cohort 1 (n ≈ 75) includ...
What is the current status of trial NCT04644549?
This trial is currently terminated. The enrollment target is 10 participants. The study started on 2021-04-27. Estimated completion is 2022-03-11.
Who is sponsoring clinical trial NCT04644549?
This trial is sponsored by Emily de los Reyes, which has 4 total clinical trials registered on ClinicalTrials.gov.
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