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NCT04569162 · ClinicalTrials.gov registry record
Rhizomelic Chondrodysplasia Punctata Registry
A clinical trial of RCDP - Rhizomelic Chondrodysplasia Punctata and RCDP1, sponsored by Nemours Children's Clinic.
- Recruiting
- Registry status
- 100
- Enrollment target
- 1
- Study location
NCT04569162: Recruiting study of RCDP - Rhizomelic Chondrodysplasia Punctata and RCDP1, sponsored by Nemours Children's Clinic.
NCT04569162 is a study of RCDP - Rhizomelic Chondrodysplasia Punctata and RCDP1 that is actively recruiting participants, run by Nemours Children's Clinic. The registered enrollment target is 100 participants. The trial reports 1 study location across 1 state. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT04569162, a study of RCDP - Rhizomelic Chondrodysplasia Punctata and RCDP1, is actively recruiting participants, sponsored by Nemours Children's Clinic.
- RECRUITING
- Registry status
- 100 participants
- Enrollment target
- 1
- Study location
Study Summary
The goal of this registry is to collect medical information on individuals with rhizomelic chondrodysplasia punctata and closely related conditions. The study team hopes to learn more about these conditions and improve the care of people with it by establishing this registry.
Primary Outcome
Data will be collected at enrollment, and over time, to allow for analysis of associated features throughout the lifespan
Study Locations (1)
Delaware
- Nemours - Wilmington
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 100 participants |
| Start Date | 2013-05-17 |
| Est. Completion | 2030-01-01 |
What NCT04569162 shows while recruiting
NCT04569162 is an observational study that tracks outcomes without assigning an intervention. The registered 100 participants enrollment target is mid-sized for trials with a published cap.
The record links to 6 conditions, with RCDP - Rhizomelic Chondrodysplasia Punctata appearing as the primary indexed condition, and to 0 interventions.
NCT04569162 reports a single indexed study location in Delaware.
Frequently Asked Questions
What is clinical trial NCT04569162 about?
NCT04569162 is a clinical study titled "Rhizomelic Chondrodysplasia Punctata Registry". The goal of this registry is to collect medical information on individuals with rhizomelic chondrodysplasia punctata and closely related conditions. The study team hopes to learn more about these conditions and improve the care of people with it by establishing this registry.
What is the current status of trial NCT04569162?
This trial is currently recruiting. The enrollment target is 100 participants. The study started on 2013-05-17. Estimated completion is 2030-01-01.
What conditions does trial NCT04569162 study?
This clinical trial studies the following conditions: RCDP - Rhizomelic Chondrodysplasia Punctata, RCDP1, RCDP2, RCDP3, RCDP4.
Who is sponsoring clinical trial NCT04569162?
This trial is sponsored by Nemours Children's Clinic, which has 108 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT04569162 being conducted?
This trial has 1 study location across Delaware. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
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