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NCT04157049 · ClinicalTrials.gov registry record
Alpha-1 Research Registry
A clinical trial of Alpha-1 Antitrypsin Deficiency, sponsored by Alpha-1 Foundation.
- Recruiting
- Registry status
- 4,000
- Enrollment target
- 1
- Study location
NCT04157049: Recruiting study of Alpha-1 Antitrypsin Deficiency, sponsored by Alpha-1 Foundation.
NCT04157049 is a study of Alpha-1 Antitrypsin Deficiency that is actively recruiting participants, run by Alpha-1 Foundation. The registered enrollment target is 4,000 participants, above the 2,175-participant average among 24 other Alpha-1 Antitrypsin Deficiency trials with a reported enrollment target (84% higher). The trial reports 1 study location across 1 state. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT04157049, a study of Alpha-1 Antitrypsin Deficiency, is actively recruiting participants, sponsored by Alpha-1 Foundation.
- RECRUITING
- Registry status
- 4,000 participants
- Enrollment target
- 1
- Study location
Study Summary
The Alpha-1 Research Registry is a confidential database made up of individuals diagnosed with Alpha-1 Antitrypsin Deficiency (Alpha-1) and individuals identified as Alpha-1 carriers. The Registry was established to facilitate research initiatives and promote the development of improved treatments and a cure for Alpha-1.
Primary Outcome
To gather accurate patient data for longitudinal prospective follow up/analysis of Alpha-1 progression.
Conditions Studied
Study Locations (1)
Florida
- Alpha-1 Foundation - Coral Gables
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 4,000 participants |
| Start Date | 2019-06-20 |
| Est. Completion | 2029-06-20 |
What NCT04157049 shows while recruiting
NCT04157049 is an observational study that tracks outcomes without assigning an intervention. Its 4,000 participants enrollment target places it among the larger protocols in the corpus, above the 2,175-participant average among 24 other Alpha-1 Antitrypsin Deficiency trials with a reported enrollment target (84% higher).
The record links to 1 condition, with Alpha-1 Antitrypsin Deficiency appearing as the primary indexed condition, and to 0 interventions.
NCT04157049 reports a single indexed study location in Florida.
Frequently Asked Questions
What is clinical trial NCT04157049 about?
NCT04157049 is a clinical study titled "Alpha-1 Research Registry". The Alpha-1 Research Registry is a confidential database made up of individuals diagnosed with Alpha-1 Antitrypsin Deficiency (Alpha-1) and individuals identified as Alpha-1 carriers. The Registry was established to facilitate research initiatives and promote the development of improved treatments a...
What is the current status of trial NCT04157049?
This trial is currently recruiting. The enrollment target is 4,000 participants. The study started on 2019-06-20. Estimated completion is 2029-06-20.
What conditions does trial NCT04157049 study?
This clinical trial studies the following conditions: Alpha-1 Antitrypsin Deficiency.
Who is sponsoring clinical trial NCT04157049?
This trial is sponsored by Alpha-1 Foundation, which has 2 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT04157049 being conducted?
This trial has 1 study location across Florida. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
Learn More About Clinical Trials
Similar trials for Alpha-1 Antitrypsin Deficiency
Matched on the same primary condition, ranked to surface studies in the same phase first, then by recruiting status, no relevance scoring or editorial curation.
Where NCT04157049's enrollment target sits among peer trials
4,000 2nd of 24 the highest of 24 other Alpha-1 Antitrypsin Deficiency trials
participants (enrollment target), bucketed by value
Each bar is a band; taller bars hold more other Alpha-1 Antitrypsin Deficiency trials. The dashed line + filled bar mark this entry. Hover or tap any bar for its full count and share, and where it sits relative to this entry.
Source ClinicalTrials.gov registry export · 2026-08-08
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