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NCT04060082 · ClinicalTrials.gov registry record
Voices Of Individuals: Challenges and Experiences Of bvFTD
A clinical trial, sponsored by University of Pennsylvania.
- Completed
- Registry status
- 26
- Enrollment target
NCT04060082: Completed study, sponsored by University of Pennsylvania.
NCT04060082 is a clinical trial that has completed, run by University of Pennsylvania. The registered enrollment target is 26 participants. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT04060082 has completed, sponsored by University of Pennsylvania.
- COMPLETED
- Registry status
- 26 participants
- Enrollment target
Study Summary
The VOICE Of bvFTD study is a telephone interview research study about life with or at risk for behavioral variant frontotemporal dementia (bvFTD). The study aims to understand how bvFTD impacts individuals' day to day lives, how people think about themselves, and what challenges they face.
Primary Outcome
How participants describe and categorize their emotional reactions to receiving a diagnosis of bvFTD or positive genetic testing result, and their experiences living with that knowledge. It will also explore how patients describe their behavior in response to the testing or diagnosis, such as use of coping strategies, challenges faced, and decisions to disclose their status to family and friends.
Interventions
- OTHER Telephone Interview
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 26 participants |
| Start Date | 2019-06-26 |
| Est. Completion | 2025-12-31 |
What the finished NCT04060082 record still lists
NCT04060082 is an observational study that tracks outcomes without assigning an intervention. The registry caps enrollment at 26 participants, a relatively small participant target.
The record links to 0 conditions, and to 1 intervention - of which Telephone Interview is the first listed.
NCT04060082 does not publish any study locations in the registry export this page uses.
Frequently Asked Questions
What is clinical trial NCT04060082 about?
NCT04060082 is a clinical study titled "Voices Of Individuals: Challenges and Experiences Of bvFTD". The VOICE Of bvFTD study is a telephone interview research study about life with or at risk for behavioral variant frontotemporal dementia (bvFTD). The study aims to understand how bvFTD impacts individuals' day to day lives, how people think about themselves, and what challenges they face.
What is the current status of trial NCT04060082?
This trial is currently completed. The enrollment target is 26 participants. The study started on 2019-06-26. Estimated completion is 2025-12-31.
What interventions are being tested in trial NCT04060082?
The interventions under investigation include: Telephone Interview (OTHER).
Who is sponsoring clinical trial NCT04060082?
This trial is sponsored by University of Pennsylvania, which has 1,423 total clinical trials registered on ClinicalTrials.gov.
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