Medical Information Only. Always consult your healthcare provider before enrolling in any clinical trial.
NCT03920774 · ClinicalTrials.gov registry record
The Natural History of Familial Dysautonomia
A clinical trial of Familial Dysautonomia (Riley-Day Syndrome) and Hereditary Sensory and Autonomic Neuropathies, sponsored by NYU Langone Health.
- Recruiting
- Registry status
- 400
- Enrollment target
- 2
- Study locations
NCT03920774 is a study of Familial Dysautonomia (Riley-Day Syndrome) and Hereditary Sensory and Autonomic Neuropathies that is actively recruiting participants, run by NYU Langone Health. The registered enrollment target is 400 participants. The trial reports 2 study locations across 2 states.
The verdict
NCT03920774, a study of Familial Dysautonomia (Riley-Day Syndrome) and Hereditary Sensory and Autonomic Neuropathies, is actively recruiting participants, sponsored by NYU Langone Health.
- RECRUITING
- Registry status
- 400 participants
- Enrollment target
- 2
- Study locations
Study Summary
The study will collect clinical information from patients with FD and allow them to give blood to help develop biological markers of the disease to aid diagnosis and treatment. This is a non-invasive, non-interventional, observation study that poses only minimal risk for participants. The study will document the clinical features of patients with FD overtime by storing their routine clinical test results in a central database. The study will involve collaborators at other specialist clinics around the world who follow/evaluate patients with FD annually. Providing blood for future use is optional.
Conditions Studied
Study Locations (2)
New York
- Dysautonomia Center - School of Medicine -NYU Langone Medical Center - New York
Ramat Gan
- Sheba Medical Center - Safra Children's Hospital - Tel Litwinsky
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 400 participants |
| Start Date | 2017-02-22 |
| Est. Completion | 2028-12-31 |
Interested in This Trial?
Full Details on ClinicalTrials.gov ↗What the Registry Record Tells You About NCT03920774
The ClinicalTrials.gov registry entry for NCT03920774 describes a study currently listed as recruiting, categorized as an unspecified phase. The registered enrollment target is 400 participants, a figure that helps gauge the scale of data the investigators plan to collect. The listed sponsor is NYU Langone Health, which has 1,164 total studies on file at ClinicalTrials.gov.
The record links to 3 conditions, with Familial Dysautonomia (Riley-Day Syndrome) appearing as the primary indexed condition, and to 0 interventions.
NCT03920774 reports 2 study locations spanning 2 distinct geographic areas - top geographies include New York, Ramat Gan.
Frequently Asked Questions
What is clinical trial NCT03920774 about?
NCT03920774 is a clinical study titled "The Natural History of Familial Dysautonomia". The study will collect clinical information from patients with FD and allow them to give blood to help develop biological markers of the disease to aid diagnosis and treatment. This is a non-invasive, non-interventional, observation study that poses only minimal risk for participants. The study wil...
What is the current status of trial NCT03920774?
This trial is currently recruiting. The enrollment target is 400 participants. The study started on 2017-02-22. Estimated completion is 2028-12-31.
What conditions does trial NCT03920774 study?
This clinical trial studies the following conditions: Familial Dysautonomia (Riley-Day Syndrome), Hereditary Sensory and Autonomic Neuropathies, Hereditary Sensory and Autonomic Neuropathy 3.
Who is sponsoring clinical trial NCT03920774?
This trial is sponsored by NYU Langone Health, which has 1,164 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT03920774 being conducted?
This trial has 2 study locations across New York, Ramat Gan. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
Learn More About Clinical Trials
Explore more on PlainTrial
Familial Dysautonomia (Riley-Day Syndrome)
All registered trials for this condition
Hereditary Sensory and Autonomic Neuropathies
All registered trials for this condition
New York
All trials with a study site in New York
Recruiting now
Find trials open to new participants near you
Rankings
Top sponsors, conditions, and phases
Read our methodology - how this data is sourced, computed, and verified.
Related
Every figure on PlainTrial is rendered directly from the ClinicalTrials.gov registry, no number is typed in by an editor. This page mirrors this trial's own ClinicalTrials.gov registry record, live from the dataset. See our editorial standards & corrections policy, the methodology behind these numbers, or report a data error.