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NCT03680924 · ClinicalTrials.gov registry record
Access to Resources for Patients With PTEN Hamartoma Tumor Syndrome
A clinical trial, sponsored by University of South Florida.
- Completed
- Registry status
- 13
- Enrollment target
NCT03680924: Completed study, sponsored by University of South Florida.
NCT03680924 is a clinical trial that has completed, run by University of South Florida. The registered enrollment target is 13 participants. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT03680924 has completed, sponsored by University of South Florida.
- COMPLETED
- Registry status
- 13 participants
- Enrollment target
Study Summary
The purpose of this study is to gain a better understanding of access to clinical and research resources for families of children affected with a phosphatase and tensin homology (PTEN) mutation. Ultimately, the researchers hope to be able to use this information to develop a standard of care for affected individuals and their family members. Family members/legal guardians of an individual with a PTEN mutation enrolled in the Rare Diseases Clinical Research Network (RDCRN) Contact Registry will be invited via email to participate in this study.
Primary Outcome
The survey will collect information regarding number of affected children in household, PTEN mutation type of effected children, age and gender of effected children, Age, neurodevelopmental disorders, medical problems, IQ, and access to clinical care (specialists currently being seen, specialists not able to see and why) of most affected child, research methods and mediums for disorder-specific treatment options for affected children, reasons behind not participating in clinical research options
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 13 participants |
| Start Date | 2018-05-11 |
| Est. Completion | 2019-09-13 |
What the finished NCT03680924 record still lists
NCT03680924 is an observational study that tracks outcomes without assigning an intervention. The registry caps enrollment at 13 participants, a relatively small participant target.
The record links to 0 conditions, and to 0 interventions.
NCT03680924 does not publish any study locations in the registry export this page uses.
Frequently Asked Questions
What is clinical trial NCT03680924 about?
NCT03680924 is a clinical study titled "Access to Resources for Patients With PTEN Hamartoma Tumor Syndrome". The purpose of this study is to gain a better understanding of access to clinical and research resources for families of children affected with a phosphatase and tensin homology (PTEN) mutation. Ultimately, the researchers hope to be able to use this information to develop a standard of care for aff...
What is the current status of trial NCT03680924?
This trial is currently completed. The enrollment target is 13 participants. The study started on 2018-05-11. Estimated completion is 2019-09-13.
Who is sponsoring clinical trial NCT03680924?
This trial is sponsored by University of South Florida, which has 252 total clinical trials registered on ClinicalTrials.gov.
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