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NCT03543852 · ClinicalTrials.gov registry record · NA

SurvivorLink: Scalability of an Electronic Personal Health Record

A NA study, sponsored by Emory University.

Completed
Registry status
NA
Development phase
580
Enrollment target

NCT03543852: Completed NA study, sponsored by Emory University.

NCT03543852 is a NA study that has completed, run by Emory University. The registered enrollment target is 580 participants, below the 1,404-participant average among 58,714 other NA trials with a reported enrollment target (59% lower). According to ClinicalTrials.gov, the official US trial registry.

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The verdict

NCT03543852, a NA study, has completed, sponsored by Emory University.

COMPLETED
Registry status
NA
Development phase
580 participants
Enrollment target

Study Summary

Previous research suggests that children and adolescents with cancer are at heightened risk of late effects that can occur months or years after cancer treatment, yet little is known about programs that increase their return for follow-up cancer care and late effects surveillance. This study will evaluate the impact of an electronic personal health record and education system, SurvivorLink, for pediatric cancer survivors and their caregivers. The researchers will develop a standardized intervention and training for the SurvivorLink trial, followed by conducting a Hybrid Type 1 effectiveness-implementation, clustered randomized, waitlist control trial to evaluate the impact of SurvivorLink on pediatric cancer patients' one year follow-up visits and completion of screening tests. The study will also assess the impact of SurvivorLink on caregiver's patient activation, survivor's and caregiver's quality of life, and self-efficacy to manage a chronic condition. This study will provide the evidence base about the effects of the system to improve follow-up care for children and adolescents with cancer and best practices for implementation for pediatric cancer centers.

Primary Outcome

The number of participants completing the follow-up survivorship visit will be determined from medical records and compared between study arms.

Interventions

  • BEHAVIORAL SurvivorLink

Trial Details

FieldValue
Enrollment Target 580 participants
Start Date 2021-06-14
Est. Completion 2024-12-25
Phase NA
Emory University

1,208 total trials

What the finished NCT03543852 record still lists

NCT03543852 is an interventional study that assigns participants to a tested intervention. The registered 580 participants enrollment target is mid-sized for trials with a published cap, below the 1,404-participant average among 58,714 other NA trials with a reported enrollment target (59% lower).

The record links to 0 conditions, and to 1 intervention - of which SurvivorLink is the first listed.

NCT03543852 does not publish any study locations in the registry export this page uses.

Frequently Asked Questions

What is clinical trial NCT03543852 about?

NCT03543852 is a clinical study titled "SurvivorLink: Scalability of an Electronic Personal Health Record". Previous research suggests that children and adolescents with cancer are at heightened risk of late effects that can occur months or years after cancer treatment, yet little is known about programs that increase their return for follow-up cancer care and late effects surveillance. This study will ev...

What is the current status of trial NCT03543852?

This trial is currently completed. It is a NA study. The enrollment target is 580 participants. The study started on 2021-06-14. Estimated completion is 2024-12-25.

What interventions are being tested in trial NCT03543852?

The interventions under investigation include: SurvivorLink (BEHAVIORAL).

Who is sponsoring clinical trial NCT03543852?

This trial is sponsored by Emory University, which has 1,208 total clinical trials registered on ClinicalTrials.gov.

How this trial's enrollment target compares

Where NCT03543852's enrollment target sits among peer trials

580 177th of 2000 higher than 1,824 of 2,000 other NA trials

participants (enrollment target), bucketed by value

Each bar is a band; taller bars hold more other NA trials. The dashed line + filled bar mark this entry. Hover or tap any bar for its full count and share, and where it sits relative to this entry.

Source ClinicalTrials.gov registry export · 2026-08-08

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Source: ClinicalTrials.gov NCT03543852, the US trial registry maintained by the National Library of Medicine. NCT03543852 (mid enrollment · none site footprint · completed) retrieved and formatted by PlainTrial, see methodology.