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NCT03158662 · ClinicalTrials.gov registry record
Survey to Identify Burdens and Unmet Needs of Patients With Epidermolysis Bullosa
A clinical trial, sponsored by Amicus Therapeutics.
- Completed
- Registry status
- 150
- Enrollment target
NCT03158662: Completed study, sponsored by Amicus Therapeutics.
NCT03158662 is a clinical trial that has completed, run by Amicus Therapeutics. The registered enrollment target is 150 participants. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT03158662 has completed, sponsored by Amicus Therapeutics.
- COMPLETED
- Registry status
- 150 participants
- Enrollment target
Study Summary
This survey intends to collect information on key aspects of life with epidermolysis bullosa (EB), including diagnostic journey, treatment, management, daily living challenges, and overall psycho-social, socio-economic, academic and family impact. Objectives: * To understand the unmet needs for people living with EB in the US * To assess the differences/similarities in the management/treatment of EB patients (including wound care, symptom management and other issues) * To assess the EB patients' and caregivers' perceptions of current management/treatment * To assess the challenges and the burden of daily living with EB * To understand EB diagnostic journey (the time to diagnosis and by what type of healthcare provider) * To identify professional disciplines involved in the diagnosis and management of EB * To understand the psycho-social, socio-economic, academic, and family impact of EB
Interventions
- OTHER Survey
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 150 participants |
| Start Date | 2017-04-02 |
| Est. Completion | 2017-06-30 |
What the finished NCT03158662 record still lists
NCT03158662 is an observational study that tracks outcomes without assigning an intervention. The registered 150 participants enrollment target is mid-sized for trials with a published cap.
The record links to 0 conditions, and to 1 intervention - of which Survey is the first listed.
NCT03158662 does not publish any study locations in the registry export this page uses.
Frequently Asked Questions
What is clinical trial NCT03158662 about?
NCT03158662 is a clinical study titled "Survey to Identify Burdens and Unmet Needs of Patients With Epidermolysis Bullosa". This survey intends to collect information on key aspects of life with epidermolysis bullosa (EB), including diagnostic journey, treatment, management, daily living challenges, and overall psycho-social, socio-economic, academic and family impact. Objectives: * To understand the unmet needs for pe...
What is the current status of trial NCT03158662?
This trial is currently completed. The enrollment target is 150 participants. The study started on 2017-04-02. Estimated completion is 2017-06-30.
What interventions are being tested in trial NCT03158662?
The interventions under investigation include: Survey (OTHER).
Who is sponsoring clinical trial NCT03158662?
This trial is sponsored by Amicus Therapeutics, which has 34 total clinical trials registered on ClinicalTrials.gov.
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