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NCT02964494 · ClinicalTrials.gov registry record
The Congenital Dyserythropoietic Anemia Registry (CDAR)
A clinical trial of Congenital Dyserythropoietic Anemia (CDA), sponsored by Children's Hospital Medical Center, Cincinnati.
- Recruiting
- Registry status
- 10,000
- Enrollment target
- 1
- Study location
NCT02964494: Recruiting study of Congenital Dyserythropoietic Anemia (CDA), sponsored by Children's Hospital Medical Center, Cincinnati.
NCT02964494 is a study of Congenital Dyserythropoietic Anemia (CDA) that is actively recruiting participants, run by Children's Hospital Medical Center, Cincinnati. The registered enrollment target is 10,000 participants. The trial reports 1 study location across 1 state. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT02964494, a study of Congenital Dyserythropoietic Anemia (CDA), is actively recruiting participants, sponsored by Children's Hospital Medical Center, Cincinnati.
- RECRUITING
- Registry status
- 10,000 participants
- Enrollment target
- 1
- Study location
Study Summary
The investigators have created and maintain a comprehensive registry for patients with the diagnosis of Congenital Dyserythropoietic Anemia (CDA) in North America. The goal of this registry is to collect long-term confidential data on patients with CDA in the US, Canada, and Mexico and maintain a bio-repository of de-identified patient blood and bone marrow specimens as a tool for the investigation of epidemiology, natural history, biology, and molecular pathogenetic mechanisms of CDA.
Primary Outcome
Clinical and laboratory information will be collected by the patient and the referring physician with questionnaires in order to obtain the natural history of the disease, including correlations, epidemiology, and biology of the different types of CDA.
Conditions Studied
Study Locations (1)
Ohio
- Cincinnati Children's Hospital Medical Center - Cincinnati
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 10,000 participants |
| Start Date | 2016-08-29 |
| Est. Completion | 2031-01 |
What NCT02964494 shows while recruiting
NCT02964494 is an observational study that tracks outcomes without assigning an intervention. Its 10,000 participants enrollment target places it among the larger protocols in the corpus.
The record links to 1 condition, with Congenital Dyserythropoietic Anemia (CDA) appearing as the primary indexed condition, and to 0 interventions.
NCT02964494 reports a single indexed study location in Ohio.
Frequently Asked Questions
What is clinical trial NCT02964494 about?
NCT02964494 is a clinical study titled "The Congenital Dyserythropoietic Anemia Registry (CDAR)". The investigators have created and maintain a comprehensive registry for patients with the diagnosis of Congenital Dyserythropoietic Anemia (CDA) in North America. The goal of this registry is to collect long-term confidential data on patients with CDA in the US, Canada, and Mexico and maintain a bi...
What is the current status of trial NCT02964494?
This trial is currently recruiting. The enrollment target is 10,000 participants. The study started on 2016-08-29. Estimated completion is 2031-01.
What conditions does trial NCT02964494 study?
This clinical trial studies the following conditions: Congenital Dyserythropoietic Anemia (CDA).
Who is sponsoring clinical trial NCT02964494?
This trial is sponsored by Children's Hospital Medical Center, Cincinnati, which has 571 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT02964494 being conducted?
This trial has 1 study location across Ohio. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
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