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NCT02918032 · ClinicalTrials.gov registry record
International Registry Study of Neutral Lipid Storage Disease (NLSD) / Triglyceride Deposit Cardiomyovasculopathy (TGCV) and Related Diseases
A clinical trial of Neutral Lipid Storage Disease, sponsored by Translational Research Center for Medical Innovation, Kobe, Hyogo, Japan.
- Recruiting
- Registry status
- 120
- Enrollment target
- 15
- Study locations
NCT02918032: Recruiting study of Neutral Lipid Storage Disease, sponsored by Translational Research Center for Medical Innovation, Kobe, Hyogo, Japan.
NCT02918032 is a study of Neutral Lipid Storage Disease that is actively recruiting participants, run by Translational Research Center for Medical Innovation, Kobe, Hyogo, Japan. The registered enrollment target is 120 participants. The trial reports 15 study locations across 14 states. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT02918032, a study of Neutral Lipid Storage Disease, is actively recruiting participants, sponsored by Translational Research Center for Medical Innovation, Kobe, Hyogo, Japan.
- RECRUITING
- Registry status
- 120 participants
- Enrollment target
- 15
- Study locations
Study Summary
This study aims to understand the state of onset of NLSD(neutral lipid storage disease) / TGCV(triglyceride deposit cardiovasculopathy) worldwide, background information of affected patients, and natural history of the disease, as well as exploring the prognostic factors and assessing the efficacy of disease-specific treatment.
Primary Outcome
This is the period from the date of diagnosis of NLSD / TGCV to the date of death from any cause. The last date of confirmation of survival will be used as the cut-off date for living patients and patients who are lost to follow-up.
Conditions Studied
Study Locations (15)
Lazio
- Sapienza University of Rome - Rome
- A.C.O. San Filippo Neri Hospital - Rome
California
- Stanford University - Stanford
New York
- Columbia University - New York
Styria
- University of Graz - Graz
Beijing Municipality
- Peking University First Hospital - Beijing
Paris
- Pitié-Salpêtrière Hospital - Paris
Bavaria
- Ludwig-Maximilians University - Munich
Lombardy
- Catholic University - Milan
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 120 participants |
| Start Date | 2014-01 |
| Est. Completion | 2028-03-31 |
What NCT02918032 shows while recruiting
NCT02918032 is an observational study that tracks outcomes without assigning an intervention. The registered 120 participants enrollment target is mid-sized for trials with a published cap.
The record links to 1 condition, with Neutral Lipid Storage Disease appearing as the primary indexed condition, and to 0 interventions.
NCT02918032 lists 15 locations in 14 states (Lazio, California, New York).
Frequently Asked Questions
What is clinical trial NCT02918032 about?
NCT02918032 is a clinical study titled "International Registry Study of Neutral Lipid Storage Disease (NLSD) / Triglyceride Deposit Cardiomyovasculopathy (TGCV) and Related Diseases". This study aims to understand the state of onset of NLSD(neutral lipid storage disease) / TGCV(triglyceride deposit cardiovasculopathy) worldwide, background information of affected patients, and natural history of the disease, as well as exploring the prognostic factors and assessing the efficacy o...
What is the current status of trial NCT02918032?
This trial is currently recruiting. The enrollment target is 120 participants. The study started on 2014-01. Estimated completion is 2028-03-31.
What conditions does trial NCT02918032 study?
This clinical trial studies the following conditions: Neutral Lipid Storage Disease.
Who is sponsoring clinical trial NCT02918032?
This trial is sponsored by Translational Research Center for Medical Innovation, Kobe, Hyogo, Japan, which has 1 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT02918032 being conducted?
This trial has 15 study locations across California, New York, Styria, Beijing Municipality, Paris. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
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