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NCT02329210 · ClinicalTrials.gov registry record
Clinical Registry Investigating Bardet-Biedl Syndrome
A clinical trial of Bardet-Biedl Syndrome, sponsored by Marshfield Clinic Research Foundation.
- Recruiting
- Registry status
- 1,200
- Enrollment target
- 1
- Study location
NCT02329210: Recruiting study of Bardet-Biedl Syndrome, sponsored by Marshfield Clinic Research Foundation.
NCT02329210 is a study of Bardet-Biedl Syndrome that is actively recruiting participants, run by Marshfield Clinic Research Foundation. The registered enrollment target is 1,200 participants. The trial reports 1 study location across 1 state. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT02329210, a study of Bardet-Biedl Syndrome, is actively recruiting participants, sponsored by Marshfield Clinic Research Foundation.
- RECRUITING
- Registry status
- 1,200 participants
- Enrollment target
- 1
- Study location
Study Summary
Bardet-Biedl Syndrome (BBS) is a rare genetic disorder associated with a vast array of symptoms. The features of BBS are highly variable, even between siblings, making long-term follow-up and centralization of information vital to better understanding this complex disease and designing effective treatments. Marshfield Clinic has developed the Clinical Registry Investigating Bardet-Biedl Syndrome (CRIBBS) to gather comprehensive health information from patients diagnosed with BBS in a single repository. This information will be used to inform patients, families, and physicians about the complex features of BBS and will serve as a platform for researchers to develop effective and targeted treatment strategies for patients with BBS. CRIBBS is a web-based, confidential database and the privacy of patients enrolled in the registry will always be respected. Information maintained in the database will be identifiable only by an assigned study identification number, not by name. The registry strictly complies with HIPAA regulations. CRIBBS participants may be contacted periodically with information regarding clinical trials or research studies, but participation is entirely voluntary. CRIBBS will bring together complex genetic and clinical information from BBS patients to accelerate research into effective treatments, attract additional researchers, and make it easier for researchers to identify patients and find funding for innovative studies.
Primary Outcome
Natural history observational study of Bardet-Biedl syndrome
Conditions Studied
Study Locations (1)
Wisconsin
- Marshfield Clinic Research Foundation - Marshfield
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 1,200 participants |
| Start Date | 2014-06 |
| Est. Completion | 2030-12 |
What NCT02329210 shows while recruiting
NCT02329210 is an observational study that tracks outcomes without assigning an intervention. Its 1,200 participants enrollment target places it among the larger protocols in the corpus.
The record links to 1 condition, with Bardet-Biedl Syndrome appearing as the primary indexed condition, and to 0 interventions.
NCT02329210 reports a single indexed study location in Wisconsin.
Frequently Asked Questions
What is clinical trial NCT02329210 about?
NCT02329210 is a clinical study titled "Clinical Registry Investigating Bardet-Biedl Syndrome". Bardet-Biedl Syndrome (BBS) is a rare genetic disorder associated with a vast array of symptoms. The features of BBS are highly variable, even between siblings, making long-term follow-up and centralization of information vital to better understanding this complex disease and designing effective tre...
What is the current status of trial NCT02329210?
This trial is currently recruiting. The enrollment target is 1,200 participants. The study started on 2014-06. Estimated completion is 2030-12.
What conditions does trial NCT02329210 study?
This clinical trial studies the following conditions: Bardet-Biedl Syndrome.
Who is sponsoring clinical trial NCT02329210?
This trial is sponsored by Marshfield Clinic Research Foundation, which has 7 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT02329210 being conducted?
This trial has 1 study location across Wisconsin. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
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