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NCT02057705 · ClinicalTrials.gov registry record

Prospective, Longitudinal Study of the Natural History and Functional Status of Patients With Myotubular Myopathy (MTM)

A clinical trial of Myotubular Myopathy, sponsored by Valerion Therapeutics.

Completed
Registry status
48
Enrollment target
13
Study locations

NCT02057705 is a study of Myotubular Myopathy that has completed, run by Valerion Therapeutics. The registered enrollment target is 48 participants. The trial reports 13 study locations across 3 states.

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The verdict

NCT02057705, a study of Myotubular Myopathy, has completed, sponsored by Valerion Therapeutics.

COMPLETED
Registry status
48 participants
Enrollment target
13
Study locations

Study Summary

This is a prospective, non-interventional, longitudinal study of the natural history and function of approximately 60 patients with MTM from the United States, Canada and Europe. The duration of the study, including the enrollment period, will be 36 months. Data from the study will be used to characterize the disease course of MTM and determine which outcome measures will be the best to assess the efficacy of potential therapies.

Conditions Studied

Study Locations (13)

Other

  • Centre Hospitalier Regional de la Citadelle - Liège
  • Hôpital Femme Mère Enfant, CHU Lyon Escale - Bron
  • Roger Salengro Hospital, CHU, Lille - Lille
  • Croix Rousse Hospital - Lyon
  • Hôpital Armand Trousseau - Paris
  • Institut I-Motion, Hôpital A. Trousseau - Paris
  • Institut de Myologie, GH Pitié Salpêtrière, Bâtiment Babinski - Paris
  • Hôpital Sainte Musse - Toulon
  • University Hospital of Essen - Essen
  • Bambino Gesù Children's Hospital - Rome
  • Hôpital Puertas de Mar - Cadiz

Massachusetts

  • Boston Children's Hospital, 300 Longwood Avenue - Boston

Ontario

  • Hospital for Sick Children, 555 University Avenue - Toronto

Trial Details

FieldValue
Enrollment Target 48 participants
Start Date 2014-02
Est. Completion 2017-06-26

Sponsor

Valerion Therapeutics

2 total trials

What the Registry Record Tells You About NCT02057705

The ClinicalTrials.gov registry entry for NCT02057705 describes a study currently listed as completed, categorized as an unspecified phase. The registered enrollment target is 48 participants, a figure that helps gauge the scale of data the investigators plan to collect. The listed sponsor is Valerion Therapeutics, which has 2 total studies on file at ClinicalTrials.gov.

The record links to 1 condition, with Myotubular Myopathy appearing as the primary indexed condition, and to 0 interventions.

NCT02057705 reports 13 study locations spanning 3 distinct geographic areas - top geographies include Other, Massachusetts, Ontario.

Frequently Asked Questions

What is clinical trial NCT02057705 about?

NCT02057705 is a clinical study titled "Prospective, Longitudinal Study of the Natural History and Functional Status of Patients With Myotubular Myopathy (MTM)". This is a prospective, non-interventional, longitudinal study of the natural history and function of approximately 60 patients with MTM from the United States, Canada and Europe. The duration of the study, including the enrollment period, will be 36 months. Data from the study will be used to charac...

What is the current status of trial NCT02057705?

This trial is currently completed. The enrollment target is 48 participants. The study started on 2014-02. Estimated completion is 2017-06-26.

What conditions does trial NCT02057705 study?

This clinical trial studies the following conditions: Myotubular Myopathy.

Who is sponsoring clinical trial NCT02057705?

This trial is sponsored by Valerion Therapeutics, which has 2 total clinical trials registered on ClinicalTrials.gov.

Where is trial NCT02057705 being conducted?

This trial has 13 study locations across Massachusetts, Ontario. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.

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Data sourced from official public datasets. See our methodology for details. Retrieved and formatted by PlainTrial Editorial

Every figure on PlainTrial is rendered directly from the ClinicalTrials.gov registry, no number is typed in by an editor. This page mirrors this trial's own ClinicalTrials.gov registry record, live from the dataset. See our editorial standards & corrections policy, the methodology behind these numbers, or report a data error.