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NCT01569971 · ClinicalTrials.gov registry record
Adolescent, Caregiver, and Young Adult Perspectives of the Transition From Pediatric to Adult Care for Sickle Cell Disease: A Preliminary Evaluation of the Sickle Cell Disease Transition Program
A clinical trial, sponsored by St. Jude Children's Research Hospital.
- Completed
- Registry status
- 55
- Enrollment target
NCT01569971 is a clinical trial that has completed, run by St. Jude Children's Research Hospital. The registered enrollment target is 55 participants.
The verdict
NCT01569971 has completed, sponsored by St. Jude Children's Research Hospital.
- COMPLETED
- Registry status
- 55 participants
- Enrollment target
Study Summary
Sickle cell disease (SCD) is a debilitating genetic disorder affecting 70,000-100,000 Americans. It is frequently associated with very serious medical complications. For children with SCD, successfully transitioning to adult care is a vital step in ensuring continuity of care, managing their disease, and improving their health outcomes. Transition programs have been created to facilitate the transition process. However, few studies have assessed transition readiness and whether transition program components meet the transition needs of patients and families. The purpose of this study is to explore transitioning from pediatric care to adult care and to assess components of the SJCRH SCD Transition Program from three perspectives: adolescents with SCD, their caregivers, and young adults with SCD who have transitioned to adult care. Data collection methods will include focus groups, questionnaires, and checklists. Qualitative data analysis procedures will be used to examine the data.
Interventions
- OTHER Assessment
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 55 participants |
| Start Date | 2012-03 |
| Est. Completion | 2014-03 |
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Full Details on ClinicalTrials.gov ↗What the Registry Record Tells You About NCT01569971
The ClinicalTrials.gov registry entry for NCT01569971 describes a study currently listed as completed, categorized as an unspecified phase. The registered enrollment target is 55 participants, a figure that helps gauge the scale of data the investigators plan to collect. The listed sponsor is St. Jude Children's Research Hospital, which has 410 total studies on file at ClinicalTrials.gov.
The record links to 0 conditions, and to 1 intervention - of which Assessment is the first listed.
NCT01569971 reports 0 study locations.
Frequently Asked Questions
What is clinical trial NCT01569971 about?
NCT01569971 is a clinical study titled "Adolescent, Caregiver, and Young Adult Perspectives of the Transition From Pediatric to Adult Care for Sickle Cell Disease: A Preliminary Evaluation of the Sickle Cell Disease Transition Program". Sickle cell disease (SCD) is a debilitating genetic disorder affecting 70,000-100,000 Americans. It is frequently associated with very serious medical complications. For children with SCD, successfully transitioning to adult care is a vital step in ensuring continuity of care, managing their disease...
What is the current status of trial NCT01569971?
This trial is currently completed. The enrollment target is 55 participants. The study started on 2012-03. Estimated completion is 2014-03.
What interventions are being tested in trial NCT01569971?
The interventions under investigation include: Assessment (OTHER).
Who is sponsoring clinical trial NCT01569971?
This trial is sponsored by St. Jude Children's Research Hospital, which has 410 total clinical trials registered on ClinicalTrials.gov.
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