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NCT00977847 · ClinicalTrials.gov registry record · NA

Integrating Patient Generated Family Health History From Varied Electronic Health Record (EHR) Entry Portals

A NA study, sponsored by Brigham and Women's Hospital.

Completed
Registry status
NA
Development phase
5,000
Enrollment target

NCT00977847 is a NA study that has completed, run by Brigham and Women's Hospital. The registered enrollment target is 5,000 participants.

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The verdict

NCT00977847, a NA study, has completed, sponsored by Brigham and Women's Hospital.

COMPLETED
Registry status
NA
Development phase
5,000 participants
Enrollment target

Study Summary

In the 21st century, the importance of family health history will increase as it will be essential to put detailed personal genetic information into the context of an individual's health, namely the context of how the shared code has played out in an individual and his/her closest relatives. These scientific developments in the investigators' understanding of genetics will demand a more comprehensive family history dataset for all patients, and the time limitations on healthcare providers demand a technology-driven solution that integrates an individual's knowledge of their family history with the medical records maintained by their health care providers. A solution does not currently exist by which most Americans can organize their family health history and then place it into their electronic health record (EHR). The investigators propose to develop and compare three different ways of proactively collecting family history information from patients using computer technology independent of a health care visit, including telephone (interactive voice response technology), tablet computers in a physician's waiting room, and a secure internet portal at home. These tools will be based on the US Surgeon General's My Family Health Portrait, an electronic family history collection tool. Family history data will be transferred and integrated with a patient's EHR in a large primary care network. This project will seek to demonstrate that family history data can be accurately reported by diverse patients using these technologies, and that these data can be integrated to tailor an individual's health care based on their familial risk.

Interventions

  • OTHER Electronic Health Portals for collecting Family History data

Trial Details

FieldValue
Enrollment Target 5,000 participants
Start Date 2010-11
Est. Completion 2012-03
Phase NA

Sponsor

Brigham and Women's Hospital

937 total trials

What the Registry Record Tells You About NCT00977847

The ClinicalTrials.gov registry entry for NCT00977847 describes a study currently listed as completed, categorized as NA. The registered enrollment target is 5,000 participants, a figure that helps gauge the scale of data the investigators plan to collect. The listed sponsor is Brigham and Women's Hospital, which has 937 total studies on file at ClinicalTrials.gov.

The record links to 0 conditions, and to 1 intervention - of which Electronic Health Portals for collecting Family History data is the first listed.

NCT00977847 reports 0 study locations.

Frequently Asked Questions

What is clinical trial NCT00977847 about?

NCT00977847 is a clinical study titled "Integrating Patient Generated Family Health History From Varied Electronic Health Record (EHR) Entry Portals". In the 21st century, the importance of family health history will increase as it will be essential to put detailed personal genetic information into the context of an individual's health, namely the context of how the shared code has played out in an individual and his/her closest relatives. These s...

What is the current status of trial NCT00977847?

This trial is currently completed. It is a NA study. The enrollment target is 5,000 participants. The study started on 2010-11. Estimated completion is 2012-03.

What interventions are being tested in trial NCT00977847?

The interventions under investigation include: Electronic Health Portals for collecting Family History data (OTHER).

Who is sponsoring clinical trial NCT00977847?

This trial is sponsored by Brigham and Women's Hospital, which has 937 total clinical trials registered on ClinicalTrials.gov.

Data sourced from official public datasets. See our methodology for details. Retrieved and formatted by PlainTrial

Every figure on PlainTrial is rendered directly from the ClinicalTrials.gov registry, no number is typed in by an editor. This page mirrors this trial's own ClinicalTrials.gov registry record, live from the dataset. See our editorial standards & corrections policy, the methodology behind these numbers, or report a data error.