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NCT00977847 · ClinicalTrials.gov registry record · NA

Integrating Patient Generated Family Health History From Varied Electronic Health Record (EHR) Entry Portals

A NA study, sponsored by Brigham and Women's Hospital.

Completed
Registry status
NA
Development phase
5,000
Enrollment target

NCT00977847: Completed NA study, sponsored by Brigham and Women's Hospital.

NCT00977847 is a NA study that has completed, run by Brigham and Women's Hospital. The registered enrollment target is 5,000 participants, above the 1,404-participant average among 58,714 other NA trials with a reported enrollment target (256% higher). According to ClinicalTrials.gov, the official US trial registry.

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The verdict

NCT00977847, a NA study, has completed, sponsored by Brigham and Women's Hospital.

COMPLETED
Registry status
NA
Development phase
5,000 participants
Enrollment target

Study Summary

In the 21st century, the importance of family health history will increase as it will be essential to put detailed personal genetic information into the context of an individual's health, namely the context of how the shared code has played out in an individual and his/her closest relatives. These scientific developments in the investigators' understanding of genetics will demand a more comprehensive family history dataset for all patients, and the time limitations on healthcare providers demand a technology-driven solution that integrates an individual's knowledge of their family history with the medical records maintained by their health care providers. A solution does not currently exist by which most Americans can organize their family health history and then place it into their electronic health record (EHR). The investigators propose to develop and compare three different ways of proactively collecting family history information from patients using computer technology independent of a health care visit, including telephone (interactive voice response technology), tablet computers in a physician's waiting room, and a secure internet portal at home. These tools will be based on the US Surgeon General's My Family Health Portrait, an electronic family history collection tool. Family history data will be transferred and integrated with a patient's EHR in a large primary care network. This project will seek to demonstrate that family history data can be accurately reported by diverse patients using these technologies, and that these data can be integrated to tailor an individual's health care based on their familial risk.

Interventions

  • OTHER Electronic Health Portals for collecting Family History data

Trial Details

FieldValue
Enrollment Target 5,000 participants
Start Date 2010-11
Est. Completion 2012-03
Phase NA
Brigham and Women's Hospital

937 total trials

What the finished NCT00977847 record still lists

NCT00977847 is an interventional study that assigns participants to a tested intervention. Its 5,000 participants enrollment target places it among the larger protocols in the corpus, above the 1,404-participant average among 58,714 other NA trials with a reported enrollment target (256% higher).

The record links to 0 conditions, and to 1 intervention - of which Electronic Health Portals for collecting Family History data is the first listed.

NCT00977847 does not publish any study locations in the registry export this page uses.

Frequently Asked Questions

What is clinical trial NCT00977847 about?

NCT00977847 is a clinical study titled "Integrating Patient Generated Family Health History From Varied Electronic Health Record (EHR) Entry Portals". In the 21st century, the importance of family health history will increase as it will be essential to put detailed personal genetic information into the context of an individual's health, namely the context of how the shared code has played out in an individual and his/her closest relatives. These s...

What is the current status of trial NCT00977847?

This trial is currently completed. It is a NA study. The enrollment target is 5,000 participants. The study started on 2010-11. Estimated completion is 2012-03.

What interventions are being tested in trial NCT00977847?

The interventions under investigation include: Electronic Health Portals for collecting Family History data (OTHER).

Who is sponsoring clinical trial NCT00977847?

This trial is sponsored by Brigham and Women's Hospital, which has 937 total clinical trials registered on ClinicalTrials.gov.

How this trial's enrollment target compares

Where NCT00977847's enrollment target sits among peer trials

5,000 25th of 2000 higher than 1,973 of 2,000 other NA trials

participants (enrollment target), bucketed by value

Each bar is a band; taller bars hold more other NA trials. The dashed line + filled bar mark this entry. Hover or tap any bar for its full count and share, and where it sits relative to this entry.

Source ClinicalTrials.gov registry export · 2026-08-08

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Source: ClinicalTrials.gov NCT00977847, the US trial registry maintained by the National Library of Medicine. NCT00977847 (large enrollment · none site footprint · completed) retrieved and formatted by PlainTrial, see methodology.