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NCT00057694 · ClinicalTrials.gov registry record
The Value of Genetic Information to Adult Adopted Individuals
A clinical trial, sponsored by National Human Genome Research Institute (NHGRI).
- Completed
- Registry status
- 40
- Enrollment target
NCT00057694 is a clinical trial that has completed, run by National Human Genome Research Institute (NHGRI). The registered enrollment target is 40 participants.
The verdict
NCT00057694 has completed, sponsored by National Human Genome Research Institute (NHGRI).
- COMPLETED
- Registry status
- 40 participants
- Enrollment target
Study Summary
This study will explore adult adoptees' perceptions of the potential value of genetic and family history information. Unlike most people, many adopted individuals do not have access to personal or family medical information because of laws and practices that prevent disclosure. Research suggests that adopted individuals are interested in obtaining this information about their biological families. This study will examine adoptees': * Satisfaction with the amount of genetic information they have, their motivations for wanting more information, and when it becomes important for them to have this information. * Perceptions of the degree to which they believe genetics and family history influence various traits and conditions. The study will also explore adoptees' interactions with health care providers so that recommendations can be developed for helping genetic counselors meet the needs of these individuals. English-speaking adoptees 18 years of age and older are eligible for this study. Those enrolled will participate in a one-time telephone interview that will take about 45 to 60 minutes. The interview will obtain demographic information, such as the adoptee's age, sex, racial and ethnic background, marital status, and education level, and will include questions in the following areas: * Personal adoption story; * Perceptions of the role of the biological family history and medical information and its importance and usefulness; * Perceptions of the influence of genetics and family history on health; * Reproductive history and pregnancy concerns related to being adopted; * Experiences and interactions with health care providers related to adoption; * Suggestions for improving interactions with health care providers.
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 40 participants |
| Start Date | 2003-04 |
| Est. Completion | 2004-01 |
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Full Details on ClinicalTrials.gov ↗What the Registry Record Tells You About NCT00057694
The ClinicalTrials.gov registry entry for NCT00057694 describes a study currently listed as completed, categorized as an unspecified phase. The registered enrollment target is 40 participants, a figure that helps gauge the scale of data the investigators plan to collect. The listed sponsor is National Human Genome Research Institute (NHGRI), which has 185 total studies on file at ClinicalTrials.gov.
The record links to 0 conditions, and to 0 interventions.
NCT00057694 reports 0 study locations.
Frequently Asked Questions
What is clinical trial NCT00057694 about?
NCT00057694 is a clinical study titled "The Value of Genetic Information to Adult Adopted Individuals". This study will explore adult adoptees' perceptions of the potential value of genetic and family history information. Unlike most people, many adopted individuals do not have access to personal or family medical information because of laws and practices that prevent disclosure. Research suggests tha...
What is the current status of trial NCT00057694?
This trial is currently completed. The enrollment target is 40 participants. The study started on 2003-04. Estimated completion is 2004-01.
Who is sponsoring clinical trial NCT00057694?
This trial is sponsored by National Human Genome Research Institute (NHGRI), which has 185 total clinical trials registered on ClinicalTrials.gov.
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