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NCT00001869 · ClinicalTrials.gov registry record
Official Record of Patients Diagnosed With Lymphangioleiomyomatosis (LAM)
A clinical trial, sponsored by National Heart, Lung, and Blood Institute (NHLBI).
- Completed
- Registry status
- 400
- Enrollment target
NCT00001869: Completed study, sponsored by National Heart, Lung, and Blood Institute (NHLBI).
NCT00001869 is a clinical trial that has completed, run by National Heart, Lung, and Blood Institute (NHLBI). The registered enrollment target is 400 participants. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT00001869 has completed, sponsored by National Heart, Lung, and Blood Institute (NHLBI).
- COMPLETED
- Registry status
- 400 participants
- Enrollment target
Study Summary
Pulmonary lymphoangioleiomyomatosis (LAM) is a rare destructive lung disease typically affecting women of childbearing age. Currently, there is no effective therapy for the disease and the prognosis is poor. In order to better study this disease, the National Heart, Lung, and Blood Institute (NHLBI) has developed a registry to keep an official record of patients diagnosed with LAM. This research project will collect data from 6 health care centers as well as outside physicians. Researchers hope to provide valuable information about the rate of lung destruction and quality of life in patients with LAM. Patients participating in this study will be followed for 5 years. Tissue collected from these patients may contribute to the development of future studies on the disease processes of LAM.
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 400 participants |
| Start Date | 1998-12 |
| Est. Completion | 2003-04 |
What the finished NCT00001869 record still lists
NCT00001869 is an observational study that tracks outcomes without assigning an intervention. The registered 400 participants enrollment target is mid-sized for trials with a published cap.
The record links to 0 conditions, and to 0 interventions.
NCT00001869 does not publish any study locations in the registry export this page uses.
Frequently Asked Questions
What is clinical trial NCT00001869 about?
NCT00001869 is a clinical study titled "Official Record of Patients Diagnosed With Lymphangioleiomyomatosis (LAM)". Pulmonary lymphoangioleiomyomatosis (LAM) is a rare destructive lung disease typically affecting women of childbearing age. Currently, there is no effective therapy for the disease and the prognosis is poor. In order to better study this disease, the National Heart, Lung, and Blood Institute (NHLBI...
What is the current status of trial NCT00001869?
This trial is currently completed. The enrollment target is 400 participants. The study started on 1998-12. Estimated completion is 2003-04.
Who is sponsoring clinical trial NCT00001869?
This trial is sponsored by National Heart, Lung, and Blood Institute (NHLBI), which has 501 total clinical trials registered on ClinicalTrials.gov.
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