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NCT07417137 · ClinicalTrials.gov registry record

A Natural History Study of Angelman Syndrome

A clinical trial, sponsored by Massachusetts General Hospital.

Recruiting
Registry status
40
Enrollment target

NCT07417137: Recruiting study, sponsored by Massachusetts General Hospital.

NCT07417137 is a clinical trial that is actively recruiting participants, run by Massachusetts General Hospital. The registered enrollment target is 40 participants. According to ClinicalTrials.gov, the official US trial registry.

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The verdict

NCT07417137 is actively recruiting participants, sponsored by Massachusetts General Hospital.

RECRUITING
Registry status
40 participants
Enrollment target

Study Summary

The goal of this observational study is to learn about the natural progression of Angelman syndrome (AS) in children and adults with a confirmed genetic diagnosis of AS. The main questions it aims to answer are: * How do developmental skills, such as communication, motor abilities, and adaptive behaviors, change over a 1-year period in people with AS? * Are there specific patterns in brain activity or sleep that are associated with changes in AS symptoms over time? Participants will: * Visit the study site 5 times over 1 year (approximately every 3 months) for assessments. * Complete tests and questionnaires about development, behaviors, and sleep with the help of their caregivers. * Undergo electroencephalograms (EEGs) to measure brain activity and wear a sleep-monitoring device at home (to collect actigraphy data).

Trial Details

FieldValue
Enrollment Target 40 participants
Start Date 2026-06
Est. Completion 2029-09

Sponsor

Massachusetts General Hospital

2,032 total trials

What the Registry Record Tells You About NCT07417137

The ClinicalTrials.gov registry entry for NCT07417137 describes a study currently listed as recruiting, categorized as an unspecified phase. The registered enrollment target is 40 participants, a figure that helps gauge the scale of data the investigators plan to collect. The listed sponsor is Massachusetts General Hospital, which has 2,032 total studies on file at ClinicalTrials.gov.

The record links to 0 conditions, and to 0 interventions.

NCT07417137 reports 0 study locations.

Frequently Asked Questions

What is clinical trial NCT07417137 about?

NCT07417137 is a clinical study titled "A Natural History Study of Angelman Syndrome". The goal of this observational study is to learn about the natural progression of Angelman syndrome (AS) in children and adults with a confirmed genetic diagnosis of AS. The main questions it aims to answer are: * How do developmental skills, such as communication, motor abilities, and adaptive beh...

What is the current status of trial NCT07417137?

This trial is currently recruiting. The enrollment target is 40 participants. The study started on 2026-06. Estimated completion is 2029-09.

Who is sponsoring clinical trial NCT07417137?

This trial is sponsored by Massachusetts General Hospital, which has 2,032 total clinical trials registered on ClinicalTrials.gov.

Data sourced from official public datasets. See our methodology for details. Retrieved and formatted by PlainTrial

Every figure on PlainTrial is rendered directly from the ClinicalTrials.gov registry, no number is typed in by an editor. This page mirrors this trial's own ClinicalTrials.gov registry record, live from the dataset. See our editorial standards & corrections policy, the methodology behind these numbers, the data changelog, or report a data error.