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Global Patient Registry of Inherited Retinal Diseases
NCT05957276 · View on ClinicalTrials.gov ↗
Study Summary
The purpose of this study is to better understand the natural history of Inherited Retinal Disease (IRD) and help inform patient management.
Conditions Studied
Interventions
- OTHER Standard of Care
Study Locations (20)
Texas
- Retina Consultants of Texas — Bellaire
- Baylor College of Medicine — Houston
- University of Texas Houston — Houston
California
- University of Southern California — Los Angeles
- UCSF — San Francisco
Other
- Centre for Eye Research Australia — East Melbourne
- Lions Eye Institute — Nedlands
Alabama
- University of Alabama Birmingham — Birmingham
Arkansas
- University of Arkansas for Medical Sciences — Little Rock
Florida
- Bascom Palmer Eye Institute — Miami
Georgia
- Emory University — Atlanta
Iowa
- University of Iowa — Iowa City
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 891 participants |
| Start Date | 2023-08-31 |
| Est. Completion | 2026-07-03 |
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Full Details on ClinicalTrials.gov ↗What the Registry Record Tells You About NCT05957276
The ClinicalTrials.gov registry entry for NCT05957276 describes a study currently listed as active not recruiting. It is categorized as an unspecified phase, which is the standard way researchers label where a study sits along the investigational pathway from early safety work through later efficacy and post-marketing evaluation. The registered enrollment target is 891 participants, a figure that helps gauge the scale of data the investigators plan to collect. The listed sponsor is Janssen Research & Development, which has 442 total studies on file at ClinicalTrials.gov, and sponsors are the parties responsible for study design, oversight, and regulatory filings.
The record links to 1 condition, with Inherited Retinal Diseases appearing as the primary indexed condition, and to 1 intervention — of which Standard of Care is the first listed. Interventions can include drugs, devices, procedures, behavioral programs, or observational arms, and each is tracked as a separate registry field so that downstream queries can filter accurately. When a trial lists multiple interventions, it usually reflects a multi-arm design or a comparison protocol rather than a single treatment being tested in isolation. The brief summary published in the registry is the clearest source of protocol intent and should be read before drawing conclusions from any sidebar tags.
Geographic footprint matters for practical reasons: NCT05957276 reports 20 study locations spanning 16 distinct geographic areas — top geographies include Texas, California, Other. A larger site network tends to correlate with broader recruitment capacity, but it does not imply anything about study quality, and site-level enrollment status can diverge from the overall registry status shown above. Every data point on this page comes from the public ClinicalTrials.gov dataset and is reproduced here for reference only; it is not a medical recommendation, an endorsement of the sponsor, or an invitation to enroll. Verify current status, eligibility criteria, and contact details directly at ClinicalTrials.gov, and discuss any participation decision with your own healthcare provider.
Frequently Asked Questions
What is clinical trial NCT05957276 about?
NCT05957276 is a clinical study titled "Global Patient Registry of Inherited Retinal Diseases". The purpose of this study is to better understand the natural history of Inherited Retinal Disease (IRD) and help inform patient management.
What is the current status of trial NCT05957276?
This trial is currently active not recruiting. The enrollment target is 891 participants. The study started on 2023-08-31. Estimated completion is 2026-07-03.
What conditions does trial NCT05957276 study?
This clinical trial studies the following conditions: Inherited Retinal Diseases. These conditions were identified from the trial registry and reflect the primary focus areas of the research.
What interventions are being tested in trial NCT05957276?
The interventions under investigation include: Standard of Care (OTHER). Each intervention is being evaluated for safety and efficacy as part of this clinical study.
Who is sponsoring clinical trial NCT05957276?
This trial is sponsored by Janssen Research & Development, which has 442 total clinical trials registered on ClinicalTrials.gov. The sponsor is responsible for the study's design, funding, and regulatory compliance.
Where is trial NCT05957276 being conducted?
This trial has 20 study locations across Alabama, Arkansas, California, Florida, Georgia. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
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