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NCT04516499 · ClinicalTrials.gov registry record
Neurofilament Surveillance Project (NSP)
A clinical trial of Frontotemporal Dementia and Frontotemporal Lobar Degeneration, sponsored by The Bluefield Project to Cure Frontotemporal Dementia.
- Active
- Registry status
- 342
- Enrollment target
- 8
- Study locations
NCT04516499 is a study of Frontotemporal Dementia and Frontotemporal Lobar Degeneration that is active but no longer recruiting, run by The Bluefield Project to Cure Frontotemporal Dementia. The registered enrollment target is 342 participants, below the 1,182-participant average among 22 other Frontotemporal Dementia trials with a reported enrollment target (71% lower). The trial reports 8 study locations across 8 states.
The verdict
NCT04516499, a study of Frontotemporal Dementia and Frontotemporal Lobar Degeneration, is active but no longer recruiting, sponsored by The Bluefield Project to Cure Frontotemporal Dementia.
- ACTIVE NOT RECRUITING
- Registry status
- 342 participants
- Enrollment target
- 8
- Study locations
Study Summary
This is a biomarker study designed to collect and analyze blood specimens from individuals carrying known familial frontotemporal lobar degeneration (f-FTLD) mutations compared to a control group of individuals without known f-FTLD mutations. The NSP is an ancillary study to the ARTFL LEFFTDS Longitudinal Frontotemporal Lobar Degeneration" (ALLFTD) study, NCT04363684. More information can be found at https://www.allftd.org/.
Conditions Studied
Study Locations (8)
California
- University of California, San Francisco - San Francisco
Florida
- Mayo Clinic Florida - Jacksonville
Maryland
- Johns Hopkins University School of Medicine - Baltimore
Massachusetts
- Massachusetts General Hospital - Charlestown
Minnesota
- Mayo Clinic - Rochester
Missouri
- Washington University in St. Louis - St Louis
New York
- Columbia University - New York
Pennsylvania
- University of Pennsylvania - Philadelphia
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 342 participants |
| Start Date | 2020-09-02 |
| Est. Completion | 2027-02 |
Interested in This Trial?
Full Details on ClinicalTrials.gov ↗What the Registry Record Tells You About NCT04516499
The ClinicalTrials.gov registry entry for NCT04516499 describes a study currently listed as active not recruiting, categorized as an unspecified phase. The registered enrollment target is 342 participants, a figure that helps gauge the scale of data the investigators plan to collect, below the 1,182-participant average among 22 other Frontotemporal Dementia trials with a reported enrollment target (71% lower). The listed sponsor is The Bluefield Project to Cure Frontotemporal Dementia, which has 1 total studies on file at ClinicalTrials.gov.
The record links to 5 conditions, with Frontotemporal Dementia appearing as the primary indexed condition, and to 0 interventions.
NCT04516499 reports 8 study locations spanning 8 distinct geographic areas - top geographies include California, Florida, Maryland.
Frequently Asked Questions
What is clinical trial NCT04516499 about?
NCT04516499 is a clinical study titled "Neurofilament Surveillance Project (NSP)". This is a biomarker study designed to collect and analyze blood specimens from individuals carrying known familial frontotemporal lobar degeneration (f-FTLD) mutations compared to a control group of individuals without known f-FTLD mutations. The NSP is an ancillary study to the ARTFL LEFFTDS Longit...
What is the current status of trial NCT04516499?
This trial is currently active not recruiting. The enrollment target is 342 participants. The study started on 2020-09-02. Estimated completion is 2027-02.
What conditions does trial NCT04516499 study?
This clinical trial studies the following conditions: Frontotemporal Dementia, Frontotemporal Lobar Degeneration, FTD, FTD-GRN, FTLD.
Who is sponsoring clinical trial NCT04516499?
This trial is sponsored by The Bluefield Project to Cure Frontotemporal Dementia, which has 1 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT04516499 being conducted?
This trial has 8 study locations across California, Florida, Maryland, Massachusetts, Minnesota. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
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