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NCT04501081 · ClinicalTrials.gov registry record

Natural History of Autosomal Dominant Hearing Loss

A clinical trial of Hearing Loss, sponsored by National Institute on Deafness and Other Communication Disorders (NIDCD).

Recruiting
Registry status
1,100
Enrollment target
1
Study location

NCT04501081 is a study of Hearing Loss that is actively recruiting participants, run by National Institute on Deafness and Other Communication Disorders (NIDCD). The registered enrollment target is 1,100 participants, below the 6,102-participant average among 58 other Hearing Loss trials with a reported enrollment target (82% lower). The trial reports 1 study location across 1 state.

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The verdict

NCT04501081, a study of Hearing Loss, is actively recruiting participants, sponsored by National Institute on Deafness and Other Communication Disorders (NIDCD).

RECRUITING
Registry status
1,100 participants
Enrollment target
1
Study location

Study Summary

Background: Hereditary hearing loss is one of the most common sensory disabilities affecting newborns. The main options for people with hereditary hearing loss are hearing aids and cochlear implants. Both options have their limitations and do not restore biological hearing. Researchers want to learn if gene editing might be a treatment option. Objective: To understand the genes that cause non-syndromic autosomal dominant hearing loss (DFNA) in people with DFNA as well as their family members. Eligibility: People age 3 99 who have DFNA, affected family members of enrolled participants with DFNA, and unaffected family members of enrolled participants Design: Participants will be screened with a medical and hearing history. Their medical records will be reviewed. Participants will have hearing tests. They will wear headphones or earplugs. They will listen to tones, sounds, and words and may be asked to describe what they hear. Participants will have balance tests. For these, they will wear googles as they watch moving lights or as cold or warm air is blown into their ears. They will sit in a spinning chair in a quiet, dark booth. From a reclined position, they will raise their head while listening to clicking sounds. Participants will have blood drawn through a needle in the arm. Some blood will be used for gene testing. Some participants will have 2 skin biopsies. The skin will be washed, and a numbing medicine will be injected. Two small pieces of skin will be removed. Participants may have a physical exam. Participation will last for up to 20 years. Participants may give medical updates once a year.

Conditions Studied

Study Locations (1)

Maryland

  • National Institutes of Health Clinical Center - Bethesda

Trial Details

FieldValue
Enrollment Target 1,100 participants
Start Date 2021-02-09
Est. Completion 2029-08-21

What the Registry Record Tells You About NCT04501081

The ClinicalTrials.gov registry entry for NCT04501081 describes a study currently listed as recruiting, categorized as an unspecified phase. The registered enrollment target is 1,100 participants, a figure that helps gauge the scale of data the investigators plan to collect, below the 6,102-participant average among 58 other Hearing Loss trials with a reported enrollment target (82% lower). The listed sponsor is National Institute on Deafness and Other Communication Disorders (NIDCD), which has 34 total studies on file at ClinicalTrials.gov.

The record links to 1 condition, with Hearing Loss appearing as the primary indexed condition, and to 0 interventions.

NCT04501081 reports 1 study location spanning 1 distinct geographic area - top geographies include Maryland.

Frequently Asked Questions

What is clinical trial NCT04501081 about?

NCT04501081 is a clinical study titled "Natural History of Autosomal Dominant Hearing Loss". Background: Hereditary hearing loss is one of the most common sensory disabilities affecting newborns. The main options for people with hereditary hearing loss are hearing aids and cochlear implants. Both options have their limitations and do not restore biological hearing. Researchers want to lear...

What is the current status of trial NCT04501081?

This trial is currently recruiting. The enrollment target is 1,100 participants. The study started on 2021-02-09. Estimated completion is 2029-08-21.

What conditions does trial NCT04501081 study?

This clinical trial studies the following conditions: Hearing Loss.

Who is sponsoring clinical trial NCT04501081?

This trial is sponsored by National Institute on Deafness and Other Communication Disorders (NIDCD), which has 34 total clinical trials registered on ClinicalTrials.gov.

Where is trial NCT04501081 being conducted?

This trial has 1 study location across Maryland. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.

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