Medical Information Only. Always consult your healthcare provider before enrolling in any clinical trial.

NCT02597881 · ClinicalTrials.gov registry record

Achondroplasia Natural History Multicenter Clinical Study

A clinical trial, sponsored by Johns Hopkins University.

Recruiting
Registry status
1,500
Enrollment target

NCT02597881: Recruiting study, sponsored by Johns Hopkins University.

NCT02597881 is a clinical trial that is actively recruiting participants, run by Johns Hopkins University. The registered enrollment target is 1,500 participants. According to ClinicalTrials.gov, the official US trial registry.

View on ClinicalTrials.gov ↗

View your shortlist → Add completion date to calendar (.ics) →

The verdict

NCT02597881 is actively recruiting participants, sponsored by Johns Hopkins University.

RECRUITING
Registry status
1,500 participants
Enrollment target

Study Summary

The purpose of this study is to create an electronic registry to house phenotypic information from patients with achondroplasia. The initial focus of this registry will be to include U.S. patients with achondroplasia. Once populated, the collective data can be queried to pursue clinical research questions pertaining to health outcomes and treatment options for patients with this conditions. The registry is longitudinal in nature with the functionality to retrospectively enter patients' clinical data from the prenatal period up through the most recent encounter, with all intervening data entered in a chronologic fashion.

Primary Outcome

Determine age at which linear growth ceases in patients with achondroplasia by gender

Trial Details

FieldValue
Enrollment Target 1,500 participants
Start Date 2016-04
Est. Completion 2030-12-31
Johns Hopkins University

1,448 total trials

What NCT02597881 shows while recruiting

NCT02597881 is an observational study that tracks outcomes without assigning an intervention. Its 1,500 participants enrollment target places it among the larger protocols in the corpus.

The record links to 0 conditions, and to 0 interventions.

NCT02597881 does not publish any study locations in the registry export this page uses.

Frequently Asked Questions

What is clinical trial NCT02597881 about?

NCT02597881 is a clinical study titled "Achondroplasia Natural History Multicenter Clinical Study". The purpose of this study is to create an electronic registry to house phenotypic information from patients with achondroplasia. The initial focus of this registry will be to include U.S. patients with achondroplasia. Once populated, the collective data can be queried to pursue clinical research que...

What is the current status of trial NCT02597881?

This trial is currently recruiting. The enrollment target is 1,500 participants. The study started on 2016-04. Estimated completion is 2030-12-31.

Who is sponsoring clinical trial NCT02597881?

This trial is sponsored by Johns Hopkins University, which has 1,448 total clinical trials registered on ClinicalTrials.gov.

Nationwide trials with similar profiles

Cross-condition peers matched on enrollment target and registry start date, not the same-condition list above.

Similar enrollment target

  • NCT00178724 · 1,500 participants

    Spinal Cord Injury Registry - North American Clinical Trials Network

  • NCT00951366 · 1,500 participants

    Preterm Lung Patient Registry

  • NCT01050504 · 1,500 participants

    Collecting and Studying Blood and Tissue Samples From Patients With Locally Recurrent or Metastatic Prostate or Bladder/Urothelial Cancer

  • NCT02071134 · 1,500 participants

    Registry of Deep Brain Stimulation With the VERCISE™ System: Vercise DBS Registry

Similar registry start date

  • NCT05988463 · started 2027-01-01 · Phase 1

    Dose-Escalation Study of Artesunate Patients With IPF

  • NCT07219706 · started 2026-12-10 · NA

    Dietary Fiber and Time Restricted Eating

  • NCT02831335 · started 2026-12-01

    Technical Development of Multi-Parametric Renocerebral MRI

  • NCT05962346 · started 2026-12 · NA

    Fetal Endoscopic Tracheal Occlusion for Congenital Diaphragmatic Hernia

Source: ClinicalTrials.gov NCT02597881, the US trial registry maintained by the National Library of Medicine. NCT02597881 (large enrollment · none site footprint · recruiting) retrieved and formatted by PlainTrial, see methodology.