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NCT01902901 · ClinicalTrials.gov registry record · NA

Clinical Implementation of Carrier Status Using Next Generation Sequencing

A NA study, sponsored by Kaiser Permanente.

Completed
Registry status
NA
Development phase
384
Enrollment target

NCT01902901 is a NA study that has completed, run by Kaiser Permanente. The registered enrollment target is 384 participants.

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The verdict

NCT01902901, a NA study, has completed, sponsored by Kaiser Permanente.

COMPLETED
Registry status
NA
Development phase
384 participants
Enrollment target

Study Summary

This study is conducting a randomized controlled trial (RCT) with up to 400 subjects (women \& partners) seeking pre-conception carrier testing to assess the impact of the program using Whole Genome Sequencing (WGS). 1. The investigators hypothesize that whole genome sequencing will increase the detection of carrier status for Mendelian recessive and x-linked conditions. 2. The investigators hypothesize that parents will act on the knowledge of their carrier status by making different reproductive choices than parents who do not receive this information. 3. The investigators hypothesize that the psychosocial risks are increased among parents who receive expanded carrier screening using Next Generation Sequencing (NGS) compared with usual care.

Interventions

  • GENETIC Whole Genome Sequencing
  • GENETIC Carrier status testing

Trial Details

FieldValue
Enrollment Target 384 participants
Start Date 2014-01
Est. Completion 2018-05
Phase NA

Sponsor

Kaiser Permanente

294 total trials

What the Registry Record Tells You About NCT01902901

The ClinicalTrials.gov registry entry for NCT01902901 describes a study currently listed as completed, categorized as NA. The registered enrollment target is 384 participants, a figure that helps gauge the scale of data the investigators plan to collect. The listed sponsor is Kaiser Permanente, which has 294 total studies on file at ClinicalTrials.gov.

The record links to 0 conditions, and to 2 interventions - of which Whole Genome Sequencing is the first listed.

NCT01902901 reports 0 study locations.

Frequently Asked Questions

What is clinical trial NCT01902901 about?

NCT01902901 is a clinical study titled "Clinical Implementation of Carrier Status Using Next Generation Sequencing". This study is conducting a randomized controlled trial (RCT) with up to 400 subjects (women \& partners) seeking pre-conception carrier testing to assess the impact of the program using Whole Genome Sequencing (WGS). 1. The investigators hypothesize that whole genome sequencing will increase the de...

What is the current status of trial NCT01902901?

This trial is currently completed. It is a NA study. The enrollment target is 384 participants. The study started on 2014-01. Estimated completion is 2018-05.

What interventions are being tested in trial NCT01902901?

The interventions under investigation include: Whole Genome Sequencing (GENETIC), Carrier status testing (GENETIC).

Who is sponsoring clinical trial NCT01902901?

This trial is sponsored by Kaiser Permanente, which has 294 total clinical trials registered on ClinicalTrials.gov.

Data sourced from official public datasets. See our methodology for details. Retrieved and formatted by PlainTrial Editorial

Every figure on PlainTrial is rendered directly from the ClinicalTrials.gov registry, no number is typed in by an editor. This page mirrors this trial's own ClinicalTrials.gov registry record, live from the dataset. See our editorial standards & corrections policy, the methodology behind these numbers, or report a data error.