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NCT01410006 · ClinicalTrials.gov registry record
Neurofibromatosis Type 1 Patient Registry
A clinical trial, sponsored by Washington University School of Medicine.
- Completed
- Registry status
- 2,391
- Enrollment target
NCT01410006: Completed study, sponsored by Washington University School of Medicine.
NCT01410006 is a clinical trial that has completed, run by Washington University School of Medicine. The registered enrollment target is 2,391 participants. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT01410006 has completed, sponsored by Washington University School of Medicine.
- COMPLETED
- Registry status
- 2,391 participants
- Enrollment target
Study Summary
The Neurofibromatosis Type 1 (NF1) Patient Registry Initiative (NPRI) is a web-based registry that asks participants to fill out a 30-minute online questionnaire to collect information about the spectrum of medical and social problems experienced by children and adults with NF1. The information gained from your participation may one day help doctors develop personalized treatments for individuals living with NF1. We are currently enrolling individuals with NF1 who either (1) HAVE previously been diagnosed with a brain tumor younger than 18 years or (2) HAVE NEVER had a brain tumor. Please note: there is no therapy associated with this study. Individuals may participate in the registry by going to https://nf1registry.wustl.edu/
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 2,391 participants |
| Start Date | 2011-05 |
| Est. Completion | 2017-07 |
What the finished NCT01410006 record still lists
NCT01410006 is an observational study that tracks outcomes without assigning an intervention. Its 2,391 participants enrollment target places it among the larger protocols in the corpus.
The record links to 0 conditions, and to 0 interventions.
NCT01410006 does not publish any study locations in the registry export this page uses.
Frequently Asked Questions
What is clinical trial NCT01410006 about?
NCT01410006 is a clinical study titled "Neurofibromatosis Type 1 Patient Registry". The Neurofibromatosis Type 1 (NF1) Patient Registry Initiative (NPRI) is a web-based registry that asks participants to fill out a 30-minute online questionnaire to collect information about the spectrum of medical and social problems experienced by children and adults with NF1. The information gain...
What is the current status of trial NCT01410006?
This trial is currently completed. The enrollment target is 2,391 participants. The study started on 2011-05. Estimated completion is 2017-07.
Who is sponsoring clinical trial NCT01410006?
This trial is sponsored by Washington University School of Medicine, which has 1,502 total clinical trials registered on ClinicalTrials.gov.
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