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NCT00891891 · ClinicalTrials.gov registry record
Psychosocial Adjustment of Adolescents With Spina Bifida
A clinical trial of Spina Bifida, sponsored by Loyola University Chicago.
- Active
- Registry status
- 140
- Enrollment target
- 1
- Study location
NCT00891891: Active study of Spina Bifida, sponsored by Loyola University Chicago.
NCT00891891 is a study of Spina Bifida that is active but no longer recruiting, run by Loyola University Chicago. The registered enrollment target is 140 participants, above the 44-participant average among 16 other Spina Bifida trials with a reported enrollment target (218% higher). The trial reports 1 study location across 1 state. According to ClinicalTrials.gov, the official US trial registry.
The verdict
NCT00891891, a study of Spina Bifida, is active but no longer recruiting, sponsored by Loyola University Chicago.
- ACTIVE NOT RECRUITING
- Registry status
- 140 participants
- Enrollment target
- 1
- Study location
Study Summary
The purpose of this longitudinal study is to evaluate a developmentally-oriented bio-neuropsychological model of adjustment in youth and young adults with spina bifida. The theoretical framework for the study is a developmentally-oriented bio-neuropsychosocial model of psychological adjustment.
Primary Outcome
Young adults will be asked questions about their pediatric care and whether they have transitioned to a primary care provider and/or an adult-oriented health care service. A quantitative coding system was developed by this team to score each participant on their transition status. The success of the transition is assessed separately for each provider, is based on an assessment of whether or not the youth has experienced transition-related meetings and includes an assessment of each youth's subje
Conditions Studied
Study Locations (1)
Illinois
- Loyola University Chicago - Chicago
Trial Details
| Field | Value |
|---|---|
| Enrollment Target | 140 participants |
| Start Date | 2005-09 |
| Est. Completion | 2025-08-01 |
What the registry record for NCT00891891 still lists
NCT00891891 is an observational study that tracks outcomes without assigning an intervention. The registered 140 participants enrollment target is mid-sized for trials with a published cap, above the 44-participant average among 16 other Spina Bifida trials with a reported enrollment target (218% higher).
The record links to 1 condition, with Spina Bifida appearing as the primary indexed condition, and to 0 interventions.
NCT00891891 reports a single indexed study location in Illinois.
Frequently Asked Questions
What is clinical trial NCT00891891 about?
NCT00891891 is a clinical study titled "Psychosocial Adjustment of Adolescents With Spina Bifida". The purpose of this longitudinal study is to evaluate a developmentally-oriented bio-neuropsychological model of adjustment in youth and young adults with spina bifida. The theoretical framework for the study is a developmentally-oriented bio-neuropsychosocial model of psychological adjustment.
What is the current status of trial NCT00891891?
This trial is currently active not recruiting. The enrollment target is 140 participants. The study started on 2005-09. Estimated completion is 2025-08-01.
What conditions does trial NCT00891891 study?
This clinical trial studies the following conditions: Spina Bifida.
Who is sponsoring clinical trial NCT00891891?
This trial is sponsored by Loyola University Chicago, which has 4 total clinical trials registered on ClinicalTrials.gov.
Where is trial NCT00891891 being conducted?
This trial has 1 study location across Illinois. Contact the study sites directly through ClinicalTrials.gov for enrollment availability.
Learn More About Clinical Trials
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Where NCT00891891's enrollment target sits among peer trials
140 2nd of 16 the highest of 16 other Spina Bifida trials
participants (enrollment target), bucketed by value
Each bar is a band; taller bars hold more other Spina Bifida trials. The dashed line + filled bar mark this entry. Hover or tap any bar for its full count and share, and where it sits relative to this entry.
Source ClinicalTrials.gov registry export · 2026-08-08
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